Celiac disease and living gluten-free : an essential guide for the newly diagnosed

305 Pages·2008·10.49 MB·English

“Essential suggestions and superb gluten-free
A Patient-Expert
recipes to help you eat healthy, well, and safely.”
—Alessio Fasano, MD
Walks You Through
f you’ve just been diagnosed with celiac disease, you’re not alone: as many as 1 in
I133 Americans have this autoimmune disorder characterized by an inability to
digest gluten, a protein found in wheat and other grains. For ten years, Jules Shepard’s
gastrointestinal symptoms went misdiagnosed. Once the cause was identified, she Everything You Need
experienced a rollercoaster of emotions and illness the year following, as she discov-
ered what she could and could not eat through trial and error.
Now, in The First Year®: Celiac Disease and Living Gluten-Free, Shepard explains
to Learn and Do®
everything you need to learn and do upon your or a family member’s diagnosis.
®
• How celiac disease afects your entire body t h e f irst year
• Eating gluten-free (and avoiding hidden glutens)
• Keeping your kitchen safe from cross-contamination
• Can I drink alcohol?
• Celiac and fertility
• Finding support groups
C eliac
• Parenting a child with celiac disease
• Dining out, traveling, and entertaining
This unique guide prioritizes all the most important information on diet and lifestyle
changes for you. Day-by-day, week-by-week, month-by-month, learn how to safely
D isease
alter your diet, manage your symptoms, and adjust to living gluten-free. Complete
with easy and delicious recipes for gluten-free baking, The First Year®: Celiac Disease and
Living Gluten-Fre is your esential guide to a healthy life. a nd Living Gluten-Free
JULES E. DOWLER SHEPARD is the author of Nearly
Normal Cooking for Gluten-Free Eating and a spokesperson for An Essential Guide for the Newly Diagnosed
University of Maryland’s Center for Celiac Research. She lives in
Catonsville, Maryland.
Jules E. Dowler Shepard
$16.95 / £9.99 / $18.50 CAN HEALTH
LDAif eCAloPOn gPR BESoSoks T he First Year® / A Lifelong Original Foreword by Alessio Fasano, MD,
A Member of the Perseus Books Group Cover design by Howard Grossman | 12E Design Founder of the Center for Celiac Research at University of Maryland
www.dacapopress.com Author photograph by Mark Finkenstaedt
MD DALIM #985725 09/28/08 CYAN MAG YELO BLK
Jules E. Dowler the
first Celiac Disease and Living Gluten-Free
Shepard
year®
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The First Year®
Celiac Disease
and Living Gluten-Free
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®
THE FIRST YEAR
Celiac
Disease
and Living Gluten-Free
An Essential Guide for the Newly Diagnosed
Jules E. Dowler Shepard
A Member of the Perseus Books Group
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Many of the designations used by manufacturers and sellers to distinguish their
products are claimed as trademarks. Where those designations appear in this book
and Da Capo Press was aware of a trademark claim, the designations have been
printed in initial capital letters.
Copyright © 2008 by Jules E. Dowler Shepard
All rights reserved. No part of this publication may be reproduced, stored in a
retrieval system, or transmitted, in any form or by any means, electronic,
mechanical, photocopying, recording, or otherwise, without the prior written
permission of the publisher. Printed in the United States of America. For
information, address Da Capo Press, 11 Cambridge Center, Cambridge, MA
02142.
Set in 11 point Adobe Garamond by the Perseus Books Group.
Shepard, Jules E. Dowler.
The first year : celiac disease and living gluten-free : an essential guide for the
newly diagnosed / Jules E. Dowler Shepard. — 1st ed.
p. cm.
Includes bibliographical references and index.
ISBN 978-0-7382-1227-2 (alk. paper)
1. Celiac disease—Popular works. 2. Gluten-free diet—Popular works.
I. Title.
RC862.C44S54 2008
616.3'99—dc22 2008033063
First Da Capo Press edition 2008
Published by Da Capo Press
A Member of the Perseus Books Group
www.dacapopress.com
Note: The information in this book is true and complete to the best of our
knowledge. This book is intended only as an informative guide for those wishing
to know more about health issues. In no way is this book intended to replace,
countermand, or conflict with the advice given to you by your own physician.
The ultimate decision concerning care should be made between you and your
doctor. We strongly recommend you follow his or her advice. Information in this
book is general and is offered with no guarantees on the part of the authors or
Da Capo Press. The authors and publisher disclaim all liability in connection
with the use of this book. The names and identifying details of people associated
with events described in this book have been changed. Any similarity to actual
persons is coincidental.
Da Capo Press books are available at special discounts for bulk purchases in the
United States by corporations, institutions, and other organizations. For more
information, please contact the Special Markets Department at the Perseus
Books Group, 2300 Chestnut Street, Suite 200, Philadelphia, PA 19103, or call
[phone], ext. 5000, or e-mail
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To my mother and my grandmother,
whose love for the kitchen and all
things homemade instilled in me at
an early age a passion for creating
foods that bring joy to others.
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Contents
Foreword by Alessio Fasano, MD xi
Introduction xv
Day 1
Learning: What Is Celiac Disease (in Plain English)? 1
Living: How Do You Know If You Have Celiac Disease? 5
Day 2
Learning: Taking the Tests 9
Living: The Importance of Being Tested 12
Day 3
Learning: “What Exactly Is Gluten and Why Doesn’t It Like Me?” 17
Living: “How Can I Have a Disease I Have Never Heard Of?” 25
Day 4
Learning: Everything You Never Wanted to Know about Your
Intestines (and Were Hoping You Wouldn’t Need to Ask!) 28
Living: “You’re in Control”: Susie Delaney’s Story 32
vii
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Contents
Day 5
Learning: The History of Celiac Disease
(and Its Current Statistical Prevalence) 35
Living: My, How Times Have Changed!: Barbara Hudson’s Story 39
Day 6
Learning: “Why Me? Why Now?” 43
Living: The Essential Ingredient to Living Gluten-Free 46
Day 7
Learning and Living: A Simple, Healing Five-Day Meal Planner 50
FIRST-WEEK MILESTONE 71
Week 2
Learning and Living: Your New Gluten-Free Kitchen
in Seven Easy Steps 73
Week 3
Learning and Living: Shopping Gluten-Free in Six Easy Steps 80
Week 4
Learning: Seeking Support 89
Living: How Others Found Help . . . and You Can, Too 95
Growing a Support Group: Patricia A. Minnigh’s Story 95
Finding Help after a Move: Sarah and Cody’s Story 98
FIRST-MONTH MILESTONE 101
Month 2
Learning: Sticky Situations 103
Dining and Dating: Susie Delaney’s Story 106
Living: Overcoming College Challenges 109
viii
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Contents
Fixing the Dining Hall: Chrissy Andrews’s Story 110
Overcoming College Challenges while Living Gluten-Free:
Julianne Valle’s Story 112
Month 3
Learning: Can You Drink Alcohol? 115
Living: Dining Out Again—Safely and Enjoyably 118
Month 4
Learning: Talking with Friends about Celiac Disease 124
Spread the Word: S. Drew’s Story 127
Living: A Blessing in Disguise: Kathleen Barrett’s Story 129
Month 5
Learning: Celiac and Infertility 132
Living: Discovering You’re Celiac after Pregnancy 135
New Baby + New Diagnosis = Healthy Future:
Tanya Hanshew’s Story 136
Month 6
Learning: Entertaining and Being Entertained 139
Living: Gluten-Free Recipes for a Crowd 143
HALF-YEAR MILESTONE 159
Month 7
Learning: Your Child and Celiac Disease 161
Living: Parenting a Child with Celiac: Angie Dabbs’s Story 165
Month 8
Learning: Kids’ Birthday Parties 170
Living: Gluten-Free Recipes Perfect for Kids and Parties 175
Month 9
Learning: Handling the Holidays 183
ix