Celiac disease and living gluten-free : an essential guide for the newly diagnosed PDF
Preview Celiac disease and living gluten-free : an essential guide for the newly diagnosed
A Patient-Expert “Essential suggestions and superb gluten-free SJ u h l ee recipes to help you eat healthy, well, and safely.” ps a E rd. Walks You Through —Alessio Fasano, MD D o w If you’ve just been diagnosed with celiac disease, you’re not alone: as many as 1 in le r 133 Americans have this autoimmune disorder characterized by an inability to Everything You Need digest gluten, a protein found in wheat and other grains. For ten years, Jules Shepard’s gastrointestinal symptoms went misdiagnosed. Once the cause was identified, she yf experienced a rollercoaster of emotions and illness the year following, as she discov- eit to Learn and Do® ered what she could and could not eat through trial and error. rh a Now, in The First Year®: Celiac Disease and Living Gluten-Free, Shepard explains rse t everything you need to learn and do upon your or a family member’s diagnosis. ® t h e f i r s t y e a r ® C • How celiac disease affects your entire body e • Eating gluten-free (and avoiding hidden glutens) l i a • Keeping your kitchen safe from cross-contamination c CC eelliiaacc D • Can I drink alcohol? i • Celiac and fertility s e a • Finding support groups s M e • Parenting a child with celiac disease D a DD iisseeaassee D • Dining out, traveling, and entertaining n A d L I M L This unique guide prioritizes all the most important information on diet and lifestyle i #9 v 8 changes for you. Day-by-day, week-by-week, month-by-month, learn how to safely in 57 2 awltitehr yeoasuyr adniedt ,d melaicnioagues yroecuirp esys mfoprt golmutse, na-nfdre ea dbjaukstin tgo, lTivhine gF igrslut tYeena-rf®r:e Ce.e Cliaocm Dpisleeatese and g G aa nndd LLiivviinngg GGlluutteenn--FFrreeee 5 09/2 Living Gluten-Free is your essential guide to a healthy life. lu 8/08 te C Y n A - N F M JULES E. DOWLER SHEPARD is the author of Nearly r An Essential Guide for the Newly Diagnosed e A Normal Cooking for Gluten-Free Eating and a spokesperson for e G Y University of Maryland’s Center for Celiac Research. She lives in E L Catonsville, Maryland. O B Jules E. Dowler Shepard L K $16.95 / £9.99 / $18.50 CAN HEALTH Foreword by Alessio Fasano, MD, DA CAPO PRESS Lifelong Books The First Year® / A Lifelong Original A Member of the Perseus Books Group Cover design by Howard Grossman | 12E Design Founder of the Center for Celiac Research at University of Maryland www.dacapopress.com Author photograph by Mark Finkenstaedt 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page i The First Year ® Celiac Disease and Living Gluten-Free 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page ii 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page iii THE FIRST YEAR ® Celiac Disease and Living Gluten-Free An Essential Guide for the Newly Diagnosed Jules E. Dowler Shepard A Member of the Perseus Books Group 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page iv Many of the designations used by manufacturers and sellers to distinguish their products are claimed as trademarks. Where those designations appear in this book and Da Capo Press was aware of a trademark claim, the designations have been printed in initial capital letters. Copyright © 2008 by Jules E. Dowler Shepard All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise, without the prior written permission of the publisher. Printed in the United States of America. For information, address Da Capo Press, 11 Cambridge Center, Cambridge, MA 02142. Set in 11 point Adobe Garamond by the Perseus Books Group. Shepard, Jules E. Dowler. The first year : celiac disease and living gluten-free : an essential guide for the newly diagnosed / Jules E. Dowler Shepard. — 1st ed. p. cm. Includes bibliographical references and index. ISBN 978-0-7382-1227-2 (alk. paper) 1. Celiac disease—Popular works. 2. Gluten-free diet—Popular works. I. Title. RC862.C44S54 2008 616.3'99—dc22 2008033063 First Da Capo Press edition 2008 Published by Da Capo Press A Member of the Perseus Books Group www.dacapopress.com Note: The information in this book is true and complete to the best of our knowledge. This book is intended only as an informative guide for those wishing to know more about health issues. In no way is this book intended to replace, countermand, or conflict with the advice given to you by your own physician. The ultimate decision concerning care should be made between you and your doctor. We strongly recommend you follow his or her advice. Information in this book is general and is offered with no guarantees on the part of the authors or Da Capo Press. The authors and publisher disclaim all liability in connection with the use of this book. The names and identifying details of people associated with events described in this book have been changed. Any similarity to actual persons is coincidental. Da Capo Press books are available at special discounts for bulk purchases in the United States by corporations, institutions, and other organizations. For more information, please contact the Special Markets Department at the Perseus Books Group, 2300 Chestnut Street, Suite 200, Philadelphia, PA 19103, or call (800) 810-4145, ext. 5000, or e-mail [email protected]. 10 9 8 7 6 5 4 3 2 1 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page v To my mother and my grandmother, whose love for the kitchen and all things homemade instilled in me at an early age a passion for creating foods that bring joy to others. 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page vi 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page vii Contents Foreword by Alessio Fasano, MD xi Introduction xv Day 1 Learning: What Is Celiac Disease (in Plain English)? 1 Living: How Do You Know If You Have Celiac Disease? 5 Day 2 Learning: Taking the Tests 9 Living: The Importance of Being Tested 12 Day 3 Learning: “What Exactly Is Gluten and Why Doesn’t It Like Me?” 17 Living: “How Can I Have a Disease I Have Never Heard Of?” 25 Day 4 Learning: Everything You Never Wanted to Know about Your Intestines (and Were Hoping You Wouldn’t Need to Ask!) 28 Living: “You’re in Control”: Susie Delaney’s Story 32 vii 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page viii Contents Day 5 Learning: The History of Celiac Disease (and Its Current Statistical Prevalence) 35 Living: My, How Times Have Changed!: Barbara Hudson’s Story 39 Day 6 Learning: “Why Me? Why Now?” 43 Living: The Essential Ingredient to Living Gluten-Free 46 Day 7 Learning and Living: A Simple, Healing Five-Day Meal Planner 50 FIRST-WEEK MILESTONE 71 Week 2 Learning and Living: Your New Gluten-Free Kitchen in Seven Easy Steps 73 Week 3 Learning and Living: Shopping Gluten-Free in Six Easy Steps 80 Week 4 Learning: Seeking Support 89 Living: How Others Found Help ... and You Can, Too 95 Growing a Support Group:Patricia A. Minnigh’s Story 95 Finding Help after a Move:Sarah and Cody’s Story 98 FIRST-MONTH MILESTONE 101 Month 2 Learning: Sticky Situations 103 Dining and Dating: Susie Delaney’s Story 106 Living: Overcoming College Challenges 109 viii 0738212272 textNEW.qxd:Shepard 10/6/08 10:53 AM Page ix Contents Fixing the Dining Hall: Chrissy Andrews’s Story 110 Overcoming College Challenges while Living Gluten-Free: Julianne Valle’s Story 112 Month 3 Learning: Can You Drink Alcohol? 115 Living: Dining Out Again—Safely and Enjoyably 118 Month 4 Learning: Talking with Friends about Celiac Disease 124 Spread the Word: S. Drew’s Story 127 Living: A Blessing in Disguise: Kathleen Barrett’s Story 129 Month 5 Learning: Celiac and Infertility 132 Living: Discovering You’re Celiac after Pregnancy 135 New Baby + New Diagnosis = Healthy Future: Tanya Hanshew’s Story 136 Month 6 Learning: Entertaining and Being Entertained 139 Living: Gluten-Free Recipes for a Crowd 143 HALF-YEAR MILESTONE 159 Month 7 Learning: Your Child and Celiac Disease 161 Living: Parenting a Child with Celiac: Angie Dabbs’s Story 165 Month 8 Learning: Kids’ Birthday Parties 170 Living: Gluten-Free Recipes Perfect for Kids and Parties 175 Month 9 Learning: Handling the Holidays 183 ix
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