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This electronic thesis or dissertation has been downloaded from the King’s Research Portal at https://kclpure.kcl.ac.uk/portal/ Management of medication for older people living at home : home carer involvement and patient safety McGraw, Caroline The copyright of this thesis rests with the author and no quotation from it or information derived from it may be published without proper acknowledgement. END USER LICENCE AGREEMENT Unless another licence is stated on the immediately following page this work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International licence. https://creativecommons.org/licenses/by-nc-nd/4.0/ You are free to copy, distribute and transmit the work Under the following conditions:  Attribution: You must attribute the work in the manner specified by the author (but not in any way that suggests that they endorse you or your use of the work).  Non Commercial: You may not use this work for commercial purposes.  No Derivative Works - You may not alter, transform, or build upon this work. Any of these conditions can be waived if you receive permission from the author. Your fair dealings and other rights are in no way affected by the above. Take down policy If you believe that this document breaches copyright please contact [email protected] providing details, and we will remove access to the work immediately and investigate your claim. Download date: 05. Jan. 2023 Medication Management for Older People Living at Home: Home Carer Involvement Patient Safety and Caroline Alice McGraw Thesis for the submitted Degree Doctor Philosophy of of Kings College London 2006 Ir2). a Abstract Home for the carers are responsible meeting personal care needs of ever more dependent living home. Personal includes the older people at care management of from district Medication transferred prescribed medication nursing services. is hazardous The this management a complex and potentially process. aims of study in home involvement in to the were understand circumstances which carer for living home jeopardise medication related activities older people at might patient identify diminishing to the safety and ways of risk of adverse events. The to human This study adopted a systems approach understanding error. approach has tools to help the generated a number of conceptual models and practical specify factors that to in hospital None these range of predispose adverse events settings. of have been in domiciliary The develop to models used care. study sought a framework specifying the range of factors that predispose to adverse events when from for living home transferred at are medication related activities older people from district home Data to open-ended nursing care services. were collected in highly interviews 64 district home two contrasting with nursing and care personnel study sites. by Data analysis catalogued the variety of medication related activated undertaken factors home developed framework the that range of carers and a specified This identified respondents as predisposing to adverse medication events. was called Framework Factors Influencing Medication Management by Home Carers the of (FFIHC). The the study critically assesses applicability of conceptual models developed in hospital to domiciliary It discusses the to settings care. also extent FFIHC has in the identification which the utility of appropriate and effective in this strategies to minimise errors and adverse events area of care. Acknowledgments There have been this thesis are a number of people without whom would not Foremost I to the in this I possible. am grateful all anonymous respondents study. like to thank Professor Charlotte Humphrey Dr Vari Drennan for would also and their the this PhD. Thanks to excellent supervision and advice over course of also Camden Islington Community Health Trust latterly Camden Primary and and more Care Trust for the funding to this PhD undertake Index Contents of Chapter 1: Introduction 12 ............................................................................................. 1.1. Motivation for 12 research ................................................................................. 1.2. Patient 19 safety ................................................................................................. 1.3. Strategies in home 23 to minimise risk care ...................................................... 1.4. Aims 28 thesis and structure of .......................................................................... Chapter 2: Communication between district home and collaboration nursing and care 30 services ....................................................................................................................... 2.1. Unified 1946 71 30 provision - .......................................................................... 2.2. Fragmentation joint 1971 90 34 and working - ................................................. 2.3. Supporting 1960 2000 40 older people - ........................................................... 2.4. Modernisation 1997 2005 48 - .......................................................................... 2.5. Conclusion 51 .................................................................................................... Chapter 3: Medication for living home 53 management older people at ...................... 3.1. Medicines handling the law 53 and ................................................................... 3.2. Adherence to 53 prescribed medication ............................................................. 3.3. Iatrogenic illness 59 ........................................................................................... 3.4. Assistance 62 with medication related activities ............................................... 3.5. Conclusion 64 .................................................................................................... 66 Chapter 4: Studying adverse events and patient safety .............................................. 66 4.1. Understanding error and adverse events ....................................................... 74 4.2. Systems to the approach analysis of risk ...................................................... 4.3. Complex high industries 79 technology and patient safety ............................... 82 4.4. Applying the to systems approach patient safety ......................................... 95 4.5. Developing framework for domiciliary a care settings ................................. 4.6. Conclusion 104 ...................................................................................................... 106 Chapter 5: Study methods ....................................................................................... 5.1. Study design 106 ................................................................................................ 5.2. Study 113 methods ............................................................................................. 5.3. Ethical 146 practice ............................................................................................ 148 5.4. Data analysis ............................................................................................... 5.5. Critique 155 of methods ..................................................................................... 5.6. Reflexivity bias 156 and reducing researcher .................................................... 5.7. Characteristics 157 of study sites ....................................................................... 5.8. Characteristics 161 of respondents .................................................................... 5.9. Characteristics 163 of service providers ............................................................ 5.10. Presentation findings 166 of ............................................................................ Chapter 6: Medication 167 related activities undertaken .............................................. 6.1. Medication by home 167 related activities undertaken carers ........................... 6.2. Medication by 173 related activities undertaken nurses .................................... 6.3. Negotiating 176 responsibilities ........................................................................ 6.4. Variation between 182 study sites ..................................................................... 6.5. Conclusion 183 .................................................................................................. Chapter 7: Domains in in of risk and patient safety medication management domiciliary 184 care ....................................................................................................... 7.1. Factors influencing 184 medication management .............................................. 7.2. Variations between home 235 sites and care sectors .......................................... 7.3. Factors to to 238 expected predispose adverse events ....................................... 7.4. Taxonomy factors to 239 of predisposing adverse events ................................... 7.5. Conclusion 251 .................................................................................................... Chapter 8: From to taking 252 minimising errors risks ................................................. 8.1. Exploring the for to 254 scope strategies minimise errors and adverse events ... 8.2. An to 264 alternative approach risk ..................................................................... References 271 ................................................................................................................ Appendices 295 ............................................................................................................... Index Figures of Figure 1.1: Combined (patient district home articles safety and nursing and/or care) 18 .................................................................................................................................... Figure 1.2: Combined (medication district home 19 articles and nursing and/or care). Figure 2.1: Management funding district home help and of nursing and services from 1946 1971 31 - ....................................................................................................... Figure 3.1: The (Goldstein 1993a) 54 medication management process et al ............... Figure 4.1: Zeebrugge-Harrisburg Syndrome (Pheasant 1988) 75 ................................ Figure 4.2: Model Threat Error in Aviation (Helmreich 1999) 76 of and et al ............. Figure 4.3: Organisational Accident Model (Reason 1993) 78 ..................................... Figure 4.4: Model Threat Error in Medical Environment (Helmreich 2000) of and a 83 .................................................................................................................................... Figure 4.5: Taxonomy the (Ternov 1999) 86 of major causes of medical mistakes ...... Figure 4.6: Checklist background influencing factors (Taylor- of or performance Adams 1999) 88 et al ...................................................................................................... Figure 4.7: Framework Factors Influencing Clinical Practice (Clinical Risk Unit of ALARM 1999) 91 and .................................................................................................... Figure 4.8: ' Hazards identified in domiciliary fit in Framework that the care settings Factors Influencing Clinical Practice 96 of ..................................................................... Figure 5.1: Intended 112 categories of respondents ....................................................... Figure 5.2: Local distribution (Site A) 119 authority organisation and of respondents Figure 5.3: Local distribution (Site B). 120 authority organisation and of respondents Figure 5.4: Selection local home in Site A 121 of authority care respondents .............. Figure 5.5: Selection local home in Site B 122 of authority care respondents .............. Figure 5.6: Distribution independent home (Site A) 125 of sector care respondents .... Figure 5.7: Distribution independent home (Site B) 126 care respondents of sector .... Figure 5.8: Selection independent home in Site A 127 of sector care organisations ..... Figure 5.9: Selection independent home in Site A 128 of sector care respondents ....... Figure5.10: Selection independent home in Site B 129 of sector care organisations ... Figure 5.11: Selection independent home in Site B 130 of sector care respondents ..... Figure 5.12: District distribution (Site A of respondents nursing organisation and (north locality)) 133 ......................................................................................................... Figure 5.13: District distribution (Site A nursing organisation and of respondents (south locality)) 133 ........................................................................................................ Figure 5.14: Selection district in Site A 136 of nursing respondents ............................. Figure 5.15: Selection district in Site B 137 of nursing respondents ............................. Figure 5.16: Interview 140 guide ................................................................................... Figure 5.17: Example thematic 152 of chart entries ...................................................... Figure 6.1: Overlap between district home in to nursing and care services relation for 177 responsibility medication related activities ........................................................ Figure 7.1: Framework Factors Influencing Medication Management by Home of Carers (FFIHC) 241 ........................................................................................................ Figure 7.2: Overlap between the factors listed in the FFICP the FFIHC 242 and ......... Figure 7.3: Institutional factors in the FFICP the FFIHC 243 and ................................ Figure 7.4: Organisation factors in FFICP FFIHC 244 the the and management and ... Figure 7.5: Work factors in the FFICP FFIHC 245 environment and ........................... Figure 7.6: Team factors in the FFICP the FFIHC 246 and .......................................... Figure 7.7: Staff factors in the FFICP the FFIHC 247 and ............................................ 248 Figure 7.8: Task factors in the FFICP the FFIHC and ............................................ 249 Figure 7.9: Patient factors in the FFICP FFIHC and .............................................. Index Tables of Table 2.1: Medical by in home problems reported people receipt of care services (PSSRU 1998) 46 ........................................................................................................... . Table 5.1: Theoretical 114 the criteria guiding selection of study sites ........................ Table 5.2: Anticipated distribution home district number and of care and nursing 116 respondents .............................................................................................................. Table 5.3: Anticipated distribution district in Si te B number and of nurse respondents 116 .................................................................................................................................. Table 5.4: Questionnaires by home district 145 returned care and nursing respondents Table 5.5: Thematic 151 charts ...................................................................................... Table 5.6: Thematic 154 chart groupings ...................................................................... Table 5.7: Age 158 structure .......................................................................................... Table 5.8: Ethnic 158 group ........................................................................................... Table 5.9: Population density 159 ................................................................................. Table 5.10: Traffic 159 congestion ................................................................................ Table 5.11: Deprivation 160 ranking ............................................................................. Table 5.12: Economic 160 activity ................................................................................ Table 5.13: Household 160 composition ....................................................................... Table 5.14: Percentage 161 of adults who were carers .................................................. Table 5.14: Number home had been in 161 of years care respondents post .................. Table 5.16: Number home had been in home 162 of years care respondents care ........ Table 5.17: Number district had been in 163 of years nurse respondents post ............. Table 5.18: District 165 nursing vacancy rates .............................................................. joint (numbers 1000 head Table 5.19: Measures of effective provision per of 166 75 population aged years and over) ......................................................................... by h Table6.1: Types of medication that home carers were allowed or prohibited ome from 178 care policies administering .............................................................................. Table 7.1: Patient identified by 192 respondents problems and remedial measures ..... Table 7.2: Difficult decisions in home 195 care ............................................................ Table 7.3: Task identified by 197 respondents problems and remedial measures ......... Table 7.4: Staff identified by 202 respondents problems and remedial measures ......... Table 7.5: Team identified by 210 respondents problems and remedial measures ....... identified by Table 7.6: Work environment problems and remedial measures (continued following 220 respondents on page) ............................................................. identified by Table 7.6: Work environment problems and remedial measures (continued from 221 respondents previous page) ........................................................... Table 7.7: Organisation identified and management problems and remedial measures by 227 respondents ......................................................................................................... Table 7.8: Institutional identified by ts problems and remedial measures responden 234 .................................................................................................................................. Index Boxes of Box 1.1: Administration doses in hospital (Sutherland of solid oral settings and Falconer 1999) 13 ........................................................................................................... Box 1.2: Precautions for the Fosamax (manufacturer's insert) 14 use of ...................... Box 1.3: Critical incident difficulties in to related communication and collaboration identified in 15 practice .................................................................................................. Box 1.4: Critical incident to the domiciliary identified related nature of care settings in 16 practice ................................................................................................................... Box 1.5: Databases 17 searched ..................................................................................... Box 1.6: Key ternis 17 concepts and related .................................................................. Box 1.6: Key in (Wilson Sheikh 2002; safety considerations primary care and Jacobson 2003) 21 et al ................................................................................................... Box 1.7: Key be that to home areas need considered when preparing a care medicine (Pharmacy Community Care Liaison Group 1998) 24 policy ........................................ Box 1.8: Suggested home training (Pharmacy Community Care carer objectives Liaison Group 1998) 25 .................................................................................................. Box 1.9: Components home briefings (SPRU (University York) 2000) 27 of carer of Box 2.1. Key for (DH 1989) 42 proposals community care reform .............................. Box 2.2: The 43 community care assessment process ................................................... Box 2.3: Different types by departments contract used social services to purchase home (Matosevic 2001) 43 care et al .............................................................................. Box 2.4: Trends in home levels from 1999 2003 (National Statistics care activity - 2004) 45 .......................................................................................................................... Box 2.5: Mechanisms to joint (DH 1998b) 49 make working easier ............................ Box 2.6: Factors between district affecting collaboration and communication nurses home 51 and care services .............................................................................................. Box 2.7: Factors identified from the literature describing the health problems at and boundary for social care that might predispose to adverse events when responsibility medication related activities is transferred from district nursing to home care services 52 .................................................................................................................................... Box 3.1: Factors identified from the literature describing medication management that for to might predispose adverse events when responsibility medication related is transferred from district home 64 activities to nursing care services .......................... Box 4.1: Florida leg (Cook 2000) 68 wrong case et al .................................................. Box 4.2: Similarities between (Helmreich anaesthesia, surgery and aviation and Davies 2004) 80 .............................................................................................................. Box 4.3: Factors distinguishing healthcare from high technology other complex industries (Reason 2003) 81 ............................................................................................ Box 4.4: Summary the failures identified in of some of the case of a post partum haemorrhage (Taylor-Adams 1999) 89 et al ................................................................... Box 4.5: Factors identified in as contributing to health an adverse event mental (Vincent 2000) 93 et al. ................................................................................................... Box 4.6: Factors identified to incident in as contributing an adverse general practice (Rogers 2002) 94 ............................................................................................................. Box 4.7: Factors that distinguish domiciliary from hospital 105 care settings settings Box5.1: Questions home steering care respondents to describe incidents 141 specific Box 5.2: Vignette hesitant to 142 presented respondents .............................................. Box 5.3: Key features framework the (Ritchie of approach Spencer 1994) 149 and ....

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Figure 7.4: Organisation and management factors in the FFICP and the FFIHC .. Box 5.2: Vignette presented to hesitant respondents no home care documentation to be found but her sister had written the name and number of the home.
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