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Caregiving for Alzheimer’s Disease and Related Disorders: Research • Practice • Policy PDF

230 Pages·2013·3.01 MB·English
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Caregiving: Research · Practice · Policy Z a Series Editor: Ronda C. Talley r i t · T An Offi cial Publication of The Rosalynn Carter Institute for Caregiving a l l e y E d s . Steven H. Zarit Editors Ronda C. Talley Caregiving for 1 Alzheimer’s Disease C a r e g and Related i v i n g f o r A Disorders l z h e i m e r ’s D Research • Practice • Policy i s e a s e a n Series Foreword by d R e Former First Lady Rosalynn Carter l a t e d D i s o r d e r s Caregiving Research (cid:129) Practice (cid:129) Policy Ronda C. Talley, Series Editor An of fi cial publication of The Rosalynn Carter Institute for Caregiving For further volumes: http://www.springer.com/series/8274 Steven H. Zarit (cid:129) Ronda C. Talley Editors Caregiving for Alzheimer’s Disease and Related Disorders Research Practice Policy (cid:129) (cid:129) Editors Steven H. Zarit Ronda C. Talley Department of Human Development Western Kentucky University and Family Studies Bowling Green , KY, USA Pennsylvania State University University Park , PA, USA ISSN 2192-340X ISSN 2192-3418 (electronic) ISBN 978-1-4614-5334-5 ISBN 978-1-4614-5335-2 (eBook) DOI 10.1007/978-1-4614-5335-2 Springer New York Heidelberg Dordrecht London Library of Congress Control Number: 2012951440 © Springer Science+Business Media New York 2013 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, speci fi cally the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on micro fi lms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. Exempted from this legal reservation are brief excerpts in connection with reviews or scholarly analysis or material supplied speci fi cally for the purpose of being entered and executed on a computer system, for exclusive use by the purchaser of the work. Duplication of this publication or parts thereof is permitted only under the provisions of the Copyright Law of the Publisher’s location, in its current version, and permission for use must always be obtained from Springer. Permissions for use may be obtained through RightsLink at the Copyright Clearance Center. Violations are liable to prosecution under the respective Copyright Law. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a speci fi c statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. While the advice and information in this book are believed to be true and accurate at the date of publication, neither the authors nor the editors nor the publisher can accept any legal responsibility for any errors or omissions that may be made. The publisher makes no warranty, express or implied, with respect to the material contained herein. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com) Editorial Board Charles Edward Drebing, PhD Associate Director of Mental Health for Psychosocial Rehabilitation & Chief of Psychology at the Edith Nourse Rogers VA Medical Center. 200 Springs Road Bedford, Massachusetts 01730 Daniel Kuhn, MSW, LCSW Rainbow Hospice & Palliative Care Greater Illinois Chapter, Alzheimer’s Association 4709 Golf Road, Suite 1015 Skokie, IL 60076 Peter Rabins, MD, MPH John Hopkins Hospital 600 N. Wolfe Street Baltimore, MD 21287-7279 Betty Hasselkus, PhD, OTR, FAOTA Emeritus Professor University of Wisconsin-Madison Kathleen O’Brien, MSW, MBA Vice President and Chief Strategy Of fi cer Great Circle S Greater St. Louis Area v vi Editorial Board Linda Teri, MD Professor Director, Northwest Research Group on Aging Psychosocial & Community Health Box 358733 University of Washington Seattle, WA 98195-8733 David Troxel, MPH Best Friends Approach Consulting Practice Santa Barbara Alzheimer’s Association 2024 De La Vina Street Suite A Santa Barbara, CA 93105 Constantine Lyketsos, MD, MHS The Johns Hopkins Hospital Department of Psychiatry & Behavioral Sciences Neuropsychiatry Service 320 Johns Hopkins Hospital Baltimore, MD 21287-5371 Barbara Vickery, MD, MPH Vice Chair, Academic Affairs, Neurology Professor, Semel Institute (NPI) UCLA Department of Neurology UCLA Clinical and Translational Science Institute Health Services Research 710 Westwood Plaza C109 RNRC Los Angeles, CA 90095 Judith Riggs Health Policy Consultant Ira Byock, MD Dartmouth-Hitchcock Medical Center Palliative Medicine One Medical Center Drive Lebanon, NH 03756 Marcos Montagnini, MD University of Michigan Geriatrics Center East Ann Arbor Health and Geriatrics Center, Floor 1 4260 Plymouth Rd Ann Arbor, MI 48109 Editorial Board vii Kenneth M. Langa, MD, PhD University of Michigan Medical School Department of Internal Medicine Division of General Medicine 3116 Taubman Center Ann Arbor, MI 48109-0376 Neal E. Cutler, PhD Executive Director, Center on Aging of the Motion Picture & Television Fund 23388 Mulholland Dr. Woodland Hills, CA, 91364 Jacobo E. Mintzer, MD Professor, ARCP Medical University of South Carolina 5900 Core Road, Suite 203 N. Charleston, SC 29406-6076 T.J. McCallum, PhD Associate Professor of Psychology Case Western Reserve University Department of Psychology Cleveland, OH 44106-7123 Jon Stuckey, PhD, Director Director of Development Messiah College One College Avenue Grantham, PA 17027 Pamela G. Reed, RN, PhD, FAAN University of Arizona College of Nursing PO Box 210203 Tucson, AZ 85721-0203 Geri Richards Hall, PhD, ARNP, CNS, FAAN Arizona Alzheimer’s Consortium Banner Alzheimer’s Institute 4745 N. 7th Street, Ste. 105 Phoenix, AZ 85014-3666 Cathleen M. Connell, PhD Professor, Health Behavior & Health Education Associate Director, Center for Managing Chronic Disease University of Michigan viii Editorial Board 2834 SPH I 1415 Washington Heights Ann Arbor, Michigan 48109-2029 Emily S. Starr, JD Partner, Ciota, Starr, & VanderLinden 625 Main St. Fitchburg, MA 01420 Stephen Post, PhD Professor of Preventive Medicine Director and Founder of the Center for Medical Humanities, Compassionate Care, and Bioethics Professor of Bioethics Stony Brook University Stony Brook, New York 11790 Greg Alan Sachs, MD Indiana University Wishard Memorial Hospital 1001 W. 10th St. Indianapolis, IN 46202-2879 Lyn M. Holley, PhD Assistant Professor, Department of Gerontology University of Nebraska at Omaha Department of Gerontology 6001 Dodge Street, Annex #24 Omaha, NE 68182-0202 Brian Kaskie, PhD Associate Professor The University of Iowa Department of Health Management and Policy College of Public Health S161 CPHB, 105 River St., N214 CPHB Iowa City, IA 52242 Steven T. DeKosky, MD Vice President and Dean for the School of Medicine University of Virginia School of Medicine School of Medicine Administration PO Box 800793 Charlottesville, VA 22908 Editorial Board ix Sanford Finkel, MD Clinical Professor of Psychiatry University of Chicago Medical School 5841 S. Maryland Ave. MC 3077 Chicago, IL 60637 Diane Feeney Mahoney, PhD ARNP BC FGSA FAAN MGH Institute of Health Professions of Massachusetts General Hospital Jacques Mohr Professor in Geriatric Nursing, Director of Gerontechnology Research and Development, & Professor of Nursing Graduate Program in Nursing Charlestown Navy Yard 36 1st Avenue Boston, MA 02129-4557

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Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take o
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