Caregiving Research (cid:129) Practice (cid:129) Policy Ronda C. Talley, Series Editor An of fi cial publication of The Rosalynn Carter Institute for Caregiving For further volumes: http://www.springer.com/series/8274 Ronda C. Talley Rhonda J.V. Montgomery ● Editors Caregiving Across the Lifespan Research Practice Policy (cid:129) (cid:129) Editors Ronda C. Talley, PhD, MPH Rhonda J.V. Montgomery, PhD Department of Psychology Helen Bader Endowed Chair in Applied Western Kentucky University Gerontology Bowling Green , KY, USA Helen Bader School of Social Welfare University of Wisconsin Milwaukee Milwaukee , WI, USA ISSN 2192-340X ISSN 2192-3418 (electronic) ISBN 978-1-4614-5552-3 ISBN 978-1-4614-5553-0 (eBook) DOI 10.1007/978-1-4614-5553-0 Springer New York Heidelberg Dordrecht London Library of Congress Control Number: 2012950360 © Springer Science+Business Media New York 2013 This work is subject to copyright. 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Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com) To my grandparents, Jim F. and Vela Booher McCoy, and Curtis Edward and Mary Ashmore Talley, whose loving care and support have meant so very much to me. Ronda C. Talley This book is dedicated to my husband Mike, who remains my constant source of support. Rhonda J.V. Montgomery Editorial Board Janai Lowenstein, MS University of Oregon David A. Mrazek, MD Mayo Clinic Lisa McElaney, MFA Vida Health Communications, Inc. Jan Blacher, PhD University of California, Riverside Lenore Behar, PhD Child & Family Program Studies Deryl Bailey, PhD University of Georgia Martha Kaufman, MS Center for Child and Family Health - NC Marleen Wong, MSW University of Southern CA Michael L. Handwerk, PhD University of Texas Glorisa Canino, PhD University of Puerto Rico Daniel Holland, PhD, MPH The Neurobehavior Center of Minnesota Jane Myers, PhD Private Practice NewPort Beach CA vii viii Editorial Board Donna Wagner, PhD Towson University Laurie Young Older Women’s League (OWL) Gema Hernandez, DPA Aging and Cultural Consultants, Inc. Judith Gonyea, PhD Boston University Sue Levkoff, ScD, SM, MSW University of South Caroline College of Social Work Bob Knight, PhD University of Southern California Karen Kaplan, ScD Ovarian Cancer National Alliance Ken Doka, PhD College of New Rochelle Series Foreword From its inception in 1987, the Rosalynn Carter Institute for Caregiving (RCI) has sought to bring attention to the extraordinary contributions made by caregivers to their loved ones. I grew up in a home that was regularly transformed into a caregiv- ing household when members of my family became seriously ill, disabled, or frail with age, so my interest in the issue is personal. In my hometown of Plains, Georgia, as in most communities across our country, it was expected that family members and neighbors would take on the responsibility of providing care whenever illness struck close to home. Delivering such care with the love, respect, and attention it deserves is both labor-intensive and personally demanding. Those who do so repre- sent one of this nation’s most signi fi cant yet underappreciated assets in our health delivery system. When the RCI began, “caregiving” was found nowhere in the nation’s health lexicon. Its existence was not a secret but rather simply accepted as a fact of life. In deciding on the direction and priorities of the new institute, we convened groups of family and professional caregivers from around the region to tell their personal sto- ries. As I listened to neighbors describe caring for aged and/or chronically ill or disabled family members, I recognized that their experiences re fl ected mine. They testi fi ed that while caregiving for them was full of personal meaning and signi fi cance and could be extremely rewarding, it could also be fraught with anxiety, stress, and feelings of isolation. Many felt unprepared and most were overwhelmed at times. A critical issue in the “ fi eld” of caregiving, I realized, was the need to better under- stand the kinds of policies and programs necessary to support those who quietly and consistently care for loved ones. With the aging of America’s Baby Boomers expecting to double the elderly pop- ulation in the next 20 years, deinstitutionalization of individuals with chronic men- tal illnesses and developmental disabilities, a rising percentage of women in the workforce, smaller and more dispersed families, changes in the role of hospitals, and a range of other factors, caregiving has become one of the most signi fi cant issues of our time. Caregiving as an area of research, as a focus and concern of policy making, and as an area of professional training and practice has reached a new and unparalleled level of importance in our society and indeed globally. ix
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