Bioethics Beyond Altruism : Donating and Transforming Human Biological Materials PDF
Preview Bioethics Beyond Altruism : Donating and Transforming Human Biological Materials
B I O E T H I C S B E Y O N D A L T R U I S M Donating & Transforming Human Biological Materials EDITED BY RHONDA M. SHAW Bioethics Beyond Altruism Rhonda M. Shaw Editor Bioethics Beyond Altruism Donating and Transforming Human Biological Materials Editor Rhonda M. Shaw Victoria University of Wellington Wellington, New Zealand ISBN 978-3-319-55531-7 ISBN 978-3-319-55532-4 (eBook) DOI 10.1007/978-3-319-55532-4 Library of Congress Control Number: 2017937276 © The Editor(s) (if applicable) and The Author(s) 2017 This work is subject to copyright. All rights are solely and exclusively licensed by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Cover illustration: © mevans/getty images Printed on acid-free paper This Palgrave Macmillan imprint is published by Springer Nature The registered company is Springer International Publishing AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland Acknowledgements I am grateful to all the authors of this volume for their original con- tributions and commitment to this project. I also wish to acknowledge the scholars who generously acted as peer reviewers for the chapters in this volume. Your insights and constructive feedback have been invalu- able. Thanks are due to Carol Bartle (Te Puawaitanga ki Otautahi Trust, New Zealand), Linda Bennett (University of Melbourne, Australia), Sharyn Graham Davies (Auckland University of Technology, New Zealand), Gill Haddow (University of Edinburgh, Scotland), Tonya Kara (Auckland City Hospital, New Zealand), Laura Machin (Lancaster University, England), Dominique Martin (Deakin University, Australia), Meredith Nash (University of Tasmania, Australia), Amrita Pande (University of Cape Town, South Africa), Beatriz Reyes-Foster (University of Central Florida, USA), Maria Olejaz Tellerup (University of Copenhagen, Denmark), and Kristin Zeiler (Linköping University, Sweden). Finally, special thanks to Ursula Robinson-Shaw for her copy editing assistance, and to Victoria University of Wellington for funding to help complete the final editing stages of the collection. v Contents Part I Introduction 1 Bioethics Beyond Altruism 3 Rhonda M. Shaw Part II Stem Cells 2 Dead Human Bodies and Embryos: Commonalities and Disparities in Ethical Debate 35 D. Gareth Jones 3 The Immortal Life of Ethics? The Alienation of Body Tissue, Ethics and the Informed Consent Procedure Within Induced Pluripotent Stem Cell Research 61 Casimir MacGregor, Tristan McCaughey, Megan Munsie, Alice Pébay and Alex Hewitt vii viii Contents 4 On the Everyday Ethics of Stem Cell Therapies in India 89 Nayantara Sheoran Appleton and Aditya Bharadwaj Part III Assisted Human Reproduction 5 Towards an Understanding of Embryo Donation in New Zealand: The Views of Donors and Recipients 115 Sonja Goedeke and Ken Daniels 6 Ethics for Embryologists 141 Ruth P. Fitzgerald and Michael Legge 7 Beyond Altruism: A Case for Compensated Surrogate Motherhood 165 Ruth Walker and Liezl van Zyl Part IV Organ Donation and Transplantation 8 Keeping it in the Family: Debating the Bio-intimacy of Uterine Transplants and Commercial Surrogacy 189 Charlotte Kroløkke and Michael Nebeling Petersen 9 Gift-of-life? The Psychosocial Experiences of Heart, Liver and Kidney Recipients 215 Geraldine O’Brien 10 Organ Donation Practices and End-of-life Care: Unusual Bedfellows or Comfortable Companions? 239 Maureen Coombs and Martin Woods 11 Valued Matter: Anthropological Insights on the (Bio)Political Economy of Organ Exchange 265 Ciara Kierans Contents ix Part V Breastmilk Exchange 12 Towards Social Maternity: Where’s the Mother? Stories from a Transgender Dad as a Case Study of Human Milk Sharing 291 Fiona Giles 13 Bio-Intimate Economies of Breastmilk Exchange: Peer-Milk Sharing and Donor Breastmilk in the NICU 319 Rhonda M. Shaw and Maggie Morgan Index 343 Editor and Contributors About the Editor Rhonda M. Shaw is Associate Professor in Sociology at Victoria University of Wellington, New Zealand. Her research interests include the sociology of morality and ethics, and empirical research on assisted human reproduction, breastmilk sharing, and organ and tissue exchange. Contributors Nayantara Sheoran Appleton Victoria University of Wellington, Wellington, New Zealand Aditya Bharadwaj Graduate Institute of International and Development Studies, Geneva, Switzerland Maureen Coombs Victoria University of Wellington, Wellington, New Zealand Ken Daniels University of Canterbury, Christchurch, New Zealand Ruth P. Fitzgerald University of Otago, Dunedin, New Zealand xi xii Editor and Contributors Fiona Giles University of Sydney, Sydney, Australia Sonja Goedeke Auckland University of Technology, Auckland, New Zealand Alex Hewitt Menzies Institute of Medical Research, University of Tasmania, Tasmania, Australia D. Gareth Jones University of Otago, Dunedin, New Zealand Ciara Kierans Department of Public Health and Policy, University of Liverpool, Liverpool, England Charlotte Kroløkke University of Southern Denmark, Odense, Denmark Michael Legge University of Otago, Dunedin, New Zealand Casimir MacGregor Monash University, Melbourne, Australia Tristan McCaughey Monash University, Melbourne, Australia Maggie Morgan Wellington Regional Hospital, Wellington, New Zealand Megan Munsie University of Melbourne, Melbourne, Australia Geraldine O’Brien Murdoch University, Perth, WA, Australia Michael Nebeling Petersen University of Southern Denmark, Odense, Denmark Alice Pébay University of Melbourne, Melbourne, Australia Rhonda M. Shaw Victoria University of Wellington, Wellington, New Zealand Ruth Walker University of Waikato, Hamilton, New Zealand Martin Woods Victoria University of Wellington, Wellington, New Zealand Liezl van Zyl University of Waikato, Hamilton, New Zealand
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