THIS BOOK IS NOT IN ANY WAY SPONSORED BY, CONNECTED TO, OR ASSOCIATED WITH THE MANUFACTURERS OF RITALIN. Copyright © 1996 by Marianne Garber, Ph.D., Stephen W. Garber, Ph.D., and Robyn Freedman Spizman All rights reserved under International and Pan-American Copyright Conventions. Published in the United States by Villard Books, a division of Random House, Inc., New York, and simultaneously in Canada by Random House of Canada Limited, Toronto. Villard Books is a registered trademark of Random House, Inc. Grateful acknowledgment is made to American Psychiatric Association for permission to reprint “Diagnostic Criteria for Attention-Deficit/Hyperactivity Disorder” from American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (Washington, D.C.: American Psychiatric Association, 1994). Reprinted by permission. LIBRARY OF CONGRESS CATALOGING-IN-PUBLICATION DATA IS AVAILABLE ISBN 0-679-45018-1 eBook ISBN: 978-0-80415136-8 v3.1 The names of the individuals involved in examples and case histories used in this book have been changed. We have randomly interchanged the pronouns used in the book. Although ADHD still appears to afflict more males than females, most often examples reflect experiences that could be those of either sex. When reading the information, feel free to think of the children, adolescents, and adults you know best. In addition, please note that the terms attention deficit hyperactivity disorder (ADHD) and attention deficit disorder (ADD) are labels used interchangeably to designate the same constellation of symptoms. Although ADD is the more popularly recognized term, ADHD is the name given to the disorder by the American Psychiatric Association in its Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV). In Beyond Ritalin we most often use the technically correct term ADHD to denote all forms of attention deficit disorders including those with and without hyperactivity. FOREWORD For the past twenty years we have been working with children and adolescents who suffer from the complex problem now called attention deficit hyperactivity disorder (ADHD). In our personal lives, we have grappled with the issues surrounding ADHD, so we know firsthand how difficult and troubling the problems associated with this disorder can be. We have written Beyond Ritalin because we now know that there is so much that can and must be done, far beyond medication alone, to help those who suffer from ADHD. In the beginning we thought we could help these youngsters without medication, using the behavioral techniques that had worked well for so many others with behavior problems at home and school. Along the way, though, we discovered that for many children medication made a significant difference, permitting the youngsters to sit longer, pay attention better, control impulsiveness, and be receptive to other kinds of therapy and instruction they needed. Medication for ADHD remains a controversial, often misunderstood issue, so we must be clear: Medication does not cure ADHD; it doesn’t teach the child how to follow directions in school, sit and do homework, make and keep friends, or be less forgetful. Beyond Ritalin presents a close look, based on current research, at what medication can and cannot do for those with ADHD. While ADHD has been traditionally considered a childhood problem, Beyond Ritalin is not written just about children and parents. As we followed the youngsters we worked with through the years, we saw that many of them grew into young men and women still dealing with many aspects of the disorder. In addition, many of their parents recognized in themselves the symptoms that define this disorder. However, other adults have also begun to ask if they might have ADHD. For the first time they were able to give a name to the troubling characteristics that had wreaked havoc with their lives. It became clear to us, as it has to so many other professionals, that ADHD is not simply a childhood problem. Beyond Ritalin is written to help individuals of all ages, and the people who care about them, understand what they can and must do to help themselves. In the 1980s, national attention came to ADHD and the medication most prescribed for it, Ritalin. The glare of the spotlight brought reasonable concern and fear. Were too many children being placed on medication? Was ADHD a scapegoat for discipline problems in the schools? In the midst of controversy, however, other important questions were lost. The questions each parent and individual must ask are: Do I have a correct diagnosis of ADHD? What kind of medication might be helpful? What else can and should I do to help myself or my child deal with this problem? At the risk of sounding trite, “To take Ritalin or not to take Ritalin” is not the only issue. Perhaps you picked up this book because you are facing the decision of what to do about ADHD for yourself or your child. Or you may have already chosen to use medication, but don’t have a clear understanding about what it does. You may have elected not to use medication and want to know what other kinds of treatment are available. We have written Beyond Ritalin to answer each of your concerns and serve as a guide to coping with and overcoming each troubling aspect of this disorder. On a daily basis we see people whose quality of life has been affected by ADHD. We have met individuals who have and haven’t been helped by various medications, and those who have found other ways to cope with this problem. We dedicate this book to all of these people, who have the courage to ask the really hard questions, to challenge professionals to find additional answers, and to be willing to search for solutions beyond Ritalin. CONTENTS Cover Title Page Copyright FOREWORD I: THE RITALIN DEBATE 1. EYE OF THE STORM Confusion and Controversy Abound 2. MEDICATION MYTHS Facts and Fallacies About Medication II: BEYOND RITALIN 3. WHY RITALIN DOESN’T DIAGNOSE ADHD How to Get an Accurate Diagnosis 4. WHAT TO TRY BEFORE YOU TRY MEDICATION Alternatives at School, Home, and Work 5. WHEN MEDICATION IS NEEDED Finding the Best Fit 6. WHY ON-TASK IN THE CLASSROOM IS NOT ENOUGH Improving Learning and Achievement 7. THE MISCUE DILEMMA Solving Social Problems 8. RECHANNELING THE ADHD MIND Learning Self-Control 9. ROUTINES MEDICATION DOESN’T TEACH Building Organization Skills for Life 10. TAMING THE TIGER WITHIN Cultivating Inner Calmness 11. ALTERNATIVE TREATMENTS Fads, Fallacies, and Facts 12. ADHD GROWN UP From Disc Jockeys to Doctors RESOURCES: CHILD, ADOLESCENT, AND ADULT ORGANIZATIONS AND SUPPORT GROUPS THAT CAN HELP BOOKS, TAPES, AND OTHER MATERIALS AFTERWORD REFERENCES Acknowledgments Other Books by This Author About the Authors I THE RITALIN DEBATE 1 EYE OF THE STORM Confusion and Controversy Abound Seven-year-old ’s teachers suspected he might have an MICKEY ALVAREZ attention deficit hyperactivity disorder (ADHD) and referred him for testing. Like so many parents we’ve seen, the Alvarezes had read the headlines and had heard the terms before. Worried and confused about their son, they made their position very clear: “Don’t say the R word! We won’t consider giving him Ritalin.” were confused. After having been diagnosed with MR. AND MRS. COHEN ADHD, their eleven-year-old son had responded well to Ritalin. JERALD His teachers reported that he was able to sit at his desk for longer periods of time, completed more assignments, and generally was more attentive in class. However, his test scores had not improved significantly, nor was he getting along that much better with his parents, siblings, or classmates. Fights were still a daily occurrence. “Ritalin is no magic pill as far as we’re concerned,” said Mr. Cohen. was fifteen when she came to see us. She had been diagnosed JESSIE KELLEY as having an attention deficit disorder when she was eight years old, had taken Ritalin, and had done quite well. Her parents were concerned because she was having difficulty paying attention and keeping up with the workload in high school. “She’s a teenager now, so ADD isn’t a problem anymore. What do we do?” asked her mom. is an up-and-coming lawyer. He had to struggle through law MICHAEL PITT school, but made it. Although a “go-getter” and great with the tiny details of contracts, he hasn’t made partner yet. When we met with him,
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