Beyond Bioethics: Toward a New Biopolitics PDF
Preview Beyond Bioethics: Toward a New Biopolitics
Beyond Bioethics Toward a New Biopolitics Edited by osagie k. obasogie and marcy darnovsky Foreword by Troy Duster Afterword by Patricia J. Williams University of California Press Beyond Bioethics Beyond Bioethics Toward a New Biopolitics Edited by osagie k. obasogie and marcy darnovsky Foreword by Troy Duster Afterword by Patricia J. Williams University of California Press University of California Press, one of the most distinguished university presses in the United States, enriches lives around the world by advancing scholarship in the humanities, social sciences, and natural sciences. Its activities are supported by the UC Press Foundation and by philanthropic contributions from individuals and institutions. For more information, visit www.ucpress.edu. University of California Press Oakland, California © 2018 by The Regents of the University of California Library of Congress Cataloging-in-Publication Data Names: Obasogie, Osagie K., editor. | Darnovsky, Marcy, editor. Title: Beyond bioethics : toward a new biopolitics / edited by Osagie K. Obasogie and Marcy Darnovsky ; foreword by Troy Duster ; afterword by Patricia J. Williams. Description: Oakland, California : University of California Press, [2018] | Includes bibliographical references and index. Identifiers: lccn 2017030709 (print) | lccn 2017035245 (ebook) | isbn 9780520961944 (ebook) | isbn 9780520277823 (cloth : alk. paper) | isbn 9780520277847 (pbk. : alk. paper) Subjects: lcsh: Biopolitics—United States. | Biopolitics. | Bioethics. Classification: lcc ja80 (ebook) | lcc ja80 .b47 2018 (print) | ddc 172—dc23 LC record available at https://lccn.loc.gov/2017030709 Manufactured in the United States of America 27 26 25 24 23 22 21 20 19 18 10 9 8 7 6 5 4 3 2 1 Contents List of Illustrations xi Foreword by Troy Duster xiii Acknowledgments xxv Note to Readers xxvii Introduction 1 Osagie K. Obasogie and Marcy Darnovsky part i. the biopolitical critique of bioethics: historical context 15 1. The Biological Inferiority of the Undeserving Poor 21 Michael B. Katz 2. Making Better Babies: Public Health and Race Betterment in Indiana, 1920–1935 32 Alexandra Minna Stern 3. Eugenics and the Nazis: The California Connection 52 Edwin Black 4. Why the Nazis Studied American Race Laws for Inspiration 60 James Q. Whitman 5. Constructing Normalcy: The Bell Curve, the Novel, and the Invention of the Disabled Body in the Nineteenth Century 63 Lennard J. Davis 6. The Eugenics Legacy of the Nobelist Who Fathered IVF 73 Osagie K. Obasogie part ii. bioethics and its discontents 79 7. A Sociological Account of the Growth of Principlism 85 John H. Evans 8. Why a Feminist Approach to Bioethics? 94 Margaret Olivia Little 9. Disability Rights Approach toward Bioethics? 106 Gregor Wolbring 10. Differences from Somewhere: The Normativity of Whiteness in Bioethics in the United States 118 Catherine Myser 11. Bioethical Silence and Black Lives 128 Derek Ayeh 12. The Ethicists 132 Carl Elliott part iii. emerging biotechnologies, extreme ideologies: the recent past and near future 151 13. The Genome as Commons 157 Tom Athanasiou and Marcy Darnovsky 14. Yuppie Eugenics 163 Ruth Hubbard and Stuart Newman 15. Brave New Genome 169 Eric S. Lander 16. Can We Cure Genetic Diseases without Slipping into Eugenics? 175 Nathaniel Comfort 17. Cyborg Soothsayers of the High-Tech Hogwash Emporia: In Amsterdam with the Singularity 186 Corey Pein part iv. markets, property, and the body 197 18. Flacking for Big Pharma 201 Harriet A. Washington 19. Your Body, Their Property 212 Osagie K. Obasogie 20. Where Babies Come From: Supply and Demand in an Infant Marketplace 216 Debora Spar 21. Dear Facebook, Please Don’t Tell Women to Lean In to Egg Freezing 226 Jessica Cussins 22. The Miracle Woman 228 Rebecca Skloot part v. patients as consumers in the gene age 239 23. What Is Your DNA Worth? 245 David Dobbs 24. Should Patients Understand That They Are Research Subjects? 250 Jenny Reardon 25. Direct-to-Consumer Genetic Tests Should Come with a Health Warning 252 Jessica Cussins 26. Genetic Testing for All Women? Not a Solution to the Breast Cancer Epidemic 256 Karuna Jaggar 27. Welcome, Freshmen: DNA Swabs, Please. 259 Troy Duster 28. Me Medicine 264 Donna Dickenson 29. Public Health in the Precision-Medicine Era 267 Ronald Bayer and Sandro Galea part vi. seeking humanity in human subjects research 271 30. Medical Exploitation: Inmates Must Not Become Guinea Pigs Again 277 Allen M. Hornblum and Osagie K. Obasogie 31. The Body Hunters 280 Marcia Angell 32. Guinea-Pigging 289 Carl Elliott 33. Human Enhancement and Experimental Research in the Military 301 Efthimios Parasidis 34. Non-Consenting Adults 314 Harriet A. Washington part vii. baby-making in the biotech age 317 35. Generation I.V.F.: Making a Baby in the Lab—10 Things I Wish Someone Had Told Me 321 Miriam Zoll 36. Queering the Fertility Clinic 328 Laura Mamo 37. Reproductive Tourism: Equality Concerns in the Global Market for Fertility Services 339 Lisa Chiyemi Ikemoto 38. Make Me a Baby as Fast as You Can 350 Douglas Pet 39. Let’s Get Rid of the Secrecy in Donor-Conceived Families 355 Naomi Cahn and Wendy Kramer part viii. selecting traits, selecting children 359 40. Disability Equality and Prenatal Testing: Contradictory or Compatible? 365 Adrienne Asch 41. The Bleak New World of Prenatal Genetics 376 Marcy Darnovsky and Alexandra Minna Stern 42. Have New Prenatal Tests Been Dangerously Oversold? 379 Beth Daley 43. Sex Selection and the Abortion Trap 387 Mara Hvistendahl 44. A Baby, Please: Blond, Freckles—Hold the Colic 393 Gautam Naik part ix. reinventing race in the gene age 397 45. Straw Men and Their Followers: The Return of Biological Race 403 Evelynn M. Hammonds 46. The Problem with Race-Based Medicine 410 Dorothy Roberts 47. Race in a Bottle 415 Jonathan Kahn 48. The Science and Business of Genetic Ancestry Testing 422 Deborah A. Bolnick et al. 49. All That Glitters Isn’t Gold 428 Osagie K. Obasogie and Troy Duster 50. High-Tech, High-Risk Forensics 435 Osagie K. Obasogie part x. biopolitics and the future 439 51. Die, Selfish Gene, Die 445 David Dobbs 52. Toward Race Impact Assessments 461 Osagie K. Obasogie 53. Human Genetic Engineering Demands More Than a Moratorium 472 Sheila Jasanoff, J. Benjamin Hurlbut, and Krishanu Saha
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