Behavioral Health Services with High-Risk Infants and Families: Meeting the Needs of Patients, Families, and Providers in Fetal, Neonatal Intensive Care Unit, and Neonatal Follow-Up Settings

488 Pages·2022·5.507 MB·English

by  Allison G. Dempsey, Joanna C.M. Cole, Sage N. Saxton

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Behavioral Health Services with High- Risk
Infants and Families
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Behavioral Health Services
with High- Risk Infants
and Families
Meeting the Needs of Patients, Families,
and Providers in Fetal, Neonatal Intensive
Care Unit, and Neonatal Follow- Up Settings
EDITED BY
ALLISON G. DEMPSEY,
JOANNA C. M. COLE,
AND
SAGE N. SAXTON
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Library of Congress Cataloging-in-Publication Data
Names: Dempsey, Allison G., editor. | Cole, Joanna C. M., editor. | Saxton, Sage N., editor.
Title: Behavioral health services with high-risk infants and families :
meeting the needs of patients, families, and providers in fetal,
neonatal intensive care unit, and neonatal follow-up settings /
[edited by] Allison G. Dempsey, Joanna C.M. Cole, Sage N. Saxton.
Description: New York, NY : Oxford University Press, 2022. |
Includes bibliographical references and index.
Identifiers: LCCN 2022008562 (print) | LCCN 2022008563 (ebook) |
ISBN 9780197545027 (paperback) | ISBN 9780197545041 (epub) | ISBN 9780197545058
Subjects: MESH: Mental Health Services | Maternal-Child Health Services | Perinatal Care |
Intensive Care, Neonatal—psychology | Intensive Care Units, Neonatal
Classification: LCC RG626 (print) | LCC RG626 (ebook) |
NLM WA 305.1 | DDC 618.3/2—dc23/eng/20220610
LC record available at https://lccn.loc.gov/2022008562
LC ebook record available at https://lccn.loc.gov/2022008563
DOI: 10.1093/med-psych/9 780197545027.001.0001
9 8 7 6 5 4 3 2 1
Printed by Marquis, Canada
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We dedicate this book to Michael Hynan, PhD, a passionate, tireless advocate
for NICU infants and their families. Dr. Hynan’s early vision helped shape
the field of NICU psychology, and his steady wisdom and mentorship helped
found the National Network of NICU Psychologists (NNNP).
We also dedicate this book to the memory of Cheryl Ann Milford, Ed.S.,
our friend, colleague, and NNNP mentor. Ms. Milford was passionate
about education and envisioned a comprehensive textbook related to NICU
psychology and behavioral health support; it is our great honor to fulfill that
dream. Cheryl, you will always be remembered, you will always be treasured,
you will always be loved. We miss you every day.
Our hope is that this book, inspired by Dr. Hynan and Ms. Milford, will serve
developing and established professionals alike and will continue to improve
patient- and family- centered care in both fetal and neonatal settings. In
their honor.
AGD, JCMC, and SNS
To Alex, who is a role model for finding joy and living with grace even
through the toughest of times— you inspire me every day. And to the amazing
interprofessional team with whom I work and the families who allow us into
their lives. I count myself lucky to be part of such an incredible community.
AGD
To my incredible fetal and ICU teams and to my fierce perinatal support
network. Thank you for your compassion and steadfast dedication. And to
the expectant and postpartum parents we serve, thank you for the honor
to walk alongside of you as we navigate the uncertainties and complex
challenges of parenthood together.
JCMC
To my precious family Rob, Sophia, and Lillian for their ongoing love and
constant support; my mentors and colleagues; and to all the children and
families who have graciously shared their experience, thank you.
SNS
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CONTENTS
Contributors xi
SECTION I. Roles and Practice Issues
1. Introduction: History of Psychological Services in Neonatal Intensive
Care 3
Michael T. Hynan
2. Roles, Activities, and Opportunities of Behavioral Health Clinicians in
Delivering Continuity of Care 20
Tiffany Willis, LaTrice L. Dowtin, Dailyn Acosta, and Kara Hansen
3. Quality Improvement and Research Across Fetal and Neonatal Care
Settings 34
Pamela A. Geller, Ariana Albanese, Victoria A. Grunberg, John Chuo, and
Chavis A. Patterson
4. Systems Interventions and Program Development 52
Susanne Klawetter, Jill A. Hoffman, Kristi Roybal, and Sunah S. Hwang
5. Interdisciplinary Behavioral Health Teams 65
Chavis A. Patterson, Mona Elgohail, Alison R. Hartman, Vincent C. Smith,
and Pamela A. Geller
6. Teaching and Training Developing Professionals in Perinatal and Neonatal
Settings 82
LaTrice L. Dowtin, Tiffany Willis, Soudabeh Givrad, and Melissa Scala
7. Operations and Ethical Considerations 95
Elizabeth A. Fischer, KristiLynn R. Cedars, Abbey Kruper, and
Steven R. Leuthner
SECTION II. Cross- Cutting Mental Health Issues and Approaches
8. Infant Mental Health for High- Risk Infants Across the Continuum
of Care 115
Miller Shivers, Annelise Cunningham, Natalia Henner, and Kerri Machut
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viii CONTENTS
9. Perinatal Mood and Anxiety Disorders Among Parents of High-R isk
Fetuses and Infants 132
Birdie G. Meyer, Brenda Papierniak, and Christena B. Raines
10. Screening for Perinatal Mood and Anxiety Disorders Across Settings 147
Amy E. Baughcum, Olivia E. Clark, Shannon L. Gillespie, and Jeanne Decker
11. Psychotherapy and Medication Interventions for Perinatal Mood
and Anxiety Disorders Across Settings 163
Teni Davoudian, Jacquelyn M. Knapp, Lana S. Weber, and Nicole Cirino
12. Trauma and Trauma-I nformed Care 181
Mary Coughlin
13. Addressing Perinatal Substance Use Across the Continuum of Care 196
Jennifer J. Paul, Jessalyn Kelleher, Susanne Klawetter, and Sarah Nagle- Yang
14. Human Milk and Breastfeeding 215
Diane L. Spatz and Elizabeth D. Morris
15. Shared Decision-M aking Across Settings 228
Jeannie Zuk, Kristin Carter, Beth M. McManus, and Brooke Dorsey Holliman
16. Perinatal Crisis and Traumatic Bereavement 245
Mara Tesler Stein and Deborah L. Davis
17. The Value of Peer Support for High- Risk Pregnant Women and Their NICU
Infants 261
Sue L. Hall, Jenny Landry, and Erin Thatcher
SECTION III. Fetal Care Settings
18. Specialty Care Settings: Perinatal Management, Fetal Therapy, and
the Fetal Therapy Center 277
Christina Paidas Teefey, Sarah Robinson, and Julie S. Moldenhauer
19. Role of Behavioral Health Clinicians in Fetal Care Settings 296
Lacy Chavis, Sakina Butt, and Elizabeth Vaught
SECTION IV. Neonatal Intensive Care Settings
20. Neonatal Intensive Care Settings 311
Sara C. Handley and David A. Munson
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CONTENTS ix
21. Role of Behavioral Health Clinicians in the NICU Setting 325
Rochelle Steinwurtzel, Sandhya S. Brachio, Sheau- Yan Ho, and
Solimar Santiago- Warner
22. Regulation, Relationships, and Reflection: Developmental Care in the
NICU 340
Ayelet Talmi and Joy V. Browne
23. Uncertainty and Coping in the NICU: Relationships Matter 359
Zina Steinberg and Susan Kraemer
24. Mental Health and Coping Challenges Among Families in the NICU 375
Jennifer Harned Adams, Stacey R. Bromberg, and Anna Zimmermann
SECTION V. Neonatal Follow- Up Settings
25. A Brief History of Neonatal Follow- Up and Why It Is Done 393
Howard Needelman, Beatrice Egboh, Whitney Strong- Bak, and
Grace Winningham
26. Common Neurodevelopmental and Behavioral Health Challenges in
Neonatal Follow- Up 406
Kathryn E. Gustafson and Mollie G. Warren
27. Role of Behavioral Health Clinicians in Neonatal Follow- Up Settings 419
Casey Hoffman and Annie Markovits
28. After the NICU: Primary Care Behavioral Health Services 435
Verenea J. Serrano, Jonna H. von Schulz, Melissa Buchholz, Kristina Malik,
Amy Wrenn, and Ayelet Talmi
Index 451