Behavioral Approaches to Chronic Disease in Adolescence: A Guide to Integrative Care PDF
Preview Behavioral Approaches to Chronic Disease in Adolescence: A Guide to Integrative Care
Behavioral Approaches to Chronic Disease in Adolescence Behavioral Approaches to Chronic Disease in Adolescence A Guide to Integrative Care Editors William T. O’Donohue University of Nevada, Reno, NV, USA Lauren Woodward Tolle University of Nevada, Reno, NV, USA 1 3 Editors WilliamT.O’Donohue LaurenWoodwardTolle DepartmentofPsychology DepartmentofPsychology UniversityofNevada UniversityofNevada RenoNV89557-0062 RenoNV89557-0062 USA USA [email protected] [email protected] ISBN978-0-387-87686-3 e-ISBN978-0-387-87687-0 DOI10.1007/978-0-387-87687-0 SpringerDordrechtHeidelbergLondonNewYork LibraryofCongressControlNumber:2009921167 #SpringerScienceþBusinessMedia,LLC2009 Allrightsreserved.Thisworkmaynotbetranslatedorcopiedinwholeorinpartwithoutthewritten permissionofthepublisher(SpringerScienceþBusinessMedia,LLC,233SpringStreet,NewYork, NY10013,USA),exceptforbriefexcerptsinconnectionwithreviewsorscholarlyanalysis.Usein connection with any form of information storage and retrieval, electronic adaptation, computer software,orbysimilarordissimilarmethodologynowknownorhereafterdevelopedisforbidden. Theuseinthispublicationoftradenames,trademarks,servicemarks,andsimilarterms,evenifthey arenotidentifiedassuch,isnottobetakenasanexpressionofopinionastowhetherornottheyare subjecttoproprietaryrights. Printedonacid-freepaper SpringerispartofSpringerScienceþBusinessMedia(www.springer.com) Preface This book fills a gap in the literature on evidence-based approaches for treating adolescents with chronic illness in an integrated care setting. It is comprehensive inaccuratelyaddressingspecificconsiderationsinherentinadolescentpsychology (therapistburnout,ethicalconsiderations,bringinginthefamily,culturalconsid- erations, etc.) and in outlining evidence-based practice guidelines for common chronic conditions in adolescence (type I diabetes, asthma, juvenile rheumatoid arthritis,chronicpain,etc.).Thereareverydifficultproblemsthatneedtobesorted out and we hope this book, while reflecting the current state of knowledge, will encourageresearchandintellectualworkinthisarea. Weowedeepgratitudetoallourcontributingauthorswhotookpartinmaking thisahigh-quality,integratedresource.WegreatlyappreciateIanMarvinneyand JaniceStern,oureditorsatSpringer,fortheirassistanceandpatienceincompleting thisproject.Wewouldalsoliketothankthewonderfulindividualswhohelpedus finishthisbook,especiallyLindaGoddard.Finally,wethankourfamilymembers JaneFisher,KatieandAnna,DennisandBarbaraWoodwardandNateTollefor theirunyieldingsupport. WilliamT. O’Donohue LaurenWoodwardTolle Reno,Nevada v Contents PartI BasicIssues Introduction:AdolescentswithChronicIllnesses:IssuesandAnswers..... 3 WilliamO’DonohueandLaurenWoodwardTolle AnIntroductiontoAdolescentDevelopment ........................ 7 AngelaJ.Huebner UniqueConsiderationswhenTreatingAdolescentswithChronic Illness...................................................... 15 DorothyE.WarnerandStuartT.Hauser AdolescentPhysiology......................................... 29 KathrynL.Eckert,VincentA.Loffredo,andKathleenO’Connor FamilyInfluenceonAdolescentTreatmentOutcomes................. 47 ClintFieldandRachelDuchoslav EthicsandtheTeenPatients .................................... 55 MichaelLavin OverextendingtheOverextended:BurnoutPotentialinHealth-Care Professionals,Psychologists,Patients,andFamilyMembers ........... 65 LaurenWoodwardTolleandSteveGraybar PartII IntegratedCarePracticeGuidelines Type1DiabetesMellitus....................................... 85 AnnetteM.LaGrecaandEleanorR.Mackey Type2DiabetesinYouth....................................... 101 AlanM.Delamater,FarrahJacquez, andAnnaMariaPatino-Fernandez IntegratedCarePracticeGuidelinesforAdolescentswithAsthma........ 111 AnthonyR.Cordaro,Jr.andMarianneZ.Wamboldt JuvenileRheumatoidArthritis................................... 129 MichaelA.RapoffandCarolB.Lindsley vii viii Contents Epilepsy.................................................... 143 DeirdreA.Caplin,JoanK.Austin,andDavidDunn Migraines/ChronicHeadaches................................... 155 JoyceEngel TheAssessmentandManagementofChronicandRecurrentPain inAdolescents ............................................... 163 GaryA.Walco,HelenRozelman,andDavidAaronMaroof AdolescentDepression......................................... 177 BrandynM.StreetandJudyGarber Cancer..................................................... 197 LisaA.Schwartz,AnneE.Kazak,andIfigeniaMougianis CysticFibrosisinAdolescents ................................... 219 AnthonyA.Hains,W.HobartDavies,DianaQuintero, andJulieA.Biller ChronicandEnd-StageRenalDisease............................. 233 MichelleA.Meade,SarahTornichio,andJohnD.Mahan SickleCellDisease ........................................... 253 LamiaP.Barakat,D.ColetteNicolaou,EmilyA.O’Hara, andSarahLevinAllen InflammatoryBowelDisease.................................... 269 CarinCunninghamandRachelNeffGreenley ChronicFatigueSyndrome ..................................... 285 M.ElenaGarralda AdolescentsLivingwithHIV/AIDS .............................. 297 MaureenE.LyonandLawrenceJ.D’Angelo Health-RelatedQualityofLifeInstrumentsforAdolescents withChronicDiseases ......................................... 311 AlexandraL.Quittner,IvetteCruz,AvaniC.Modi, andKristenK.Marciel Index...................................................... 329 Contributors SarahLevinAllen ClinicalPsychologyProgram,DrexelUniversity, Philadelphia,PA,USA JoanAustin,DNS,RN,FAAN CenterforEnhancingQualityofLifeinChronic Illness,IndianaUniversitySchoolofNursing,Indianapolis,IN,USA LamiaP.Barakat,Ph.D. Children’sHospitalofPhiladelphiaandUniversityof PennsylvaniaSchoolofMedicine,DrexelUniversity,Philadelphia,PA,USA JulieA.Biller,M.D. MedicalCollegeofWisconsin,Milwaukee,WI,USA DedeeCaplin,Ph.D. DepartmentofPediatrics,UniversityofUtahHealth SciencesCenter,SaltLakeCity,UT,USA AnthonyR.Cordaro,Jr.,M.D. DepartmentofPsychiatry,TheChildren’s Hospital,UniversityofColoradoatDenverandHealthSciencesCenter,Aurora, CO,USA IvetteCruz,M.S. DepartmentofPsychology,UniversityofMiami,Miami,FL, USA CarinCunningham,Ph.D. CaseWesternReserveSchoolofMedicine, Cleveland,OH,USA LawrenceJ.D’Angelo,M.D.,MPH DivisionofAdolescentandYoung,Adult Medicine,Children’sNationalMedicalCenter,Washington,DC,USA W.HobartDavies,Ph.D. DepartmentofPsychology,UniversityofWisconsin– Milwaukee,Milwaukee,WI,USA AlanDelamater,Ph.D. DepartmentofPediatrics,UniversityofMiamiLeonard M.MillerSchoolofMedicine,Miami,FL,USA RachelDuchoslav,Ph.D. DepartmentofPsychology,UtahStateUniversity, Logan,UT,USA DavidW.Dunn,M.D. DepartmentofPsychiatry,IndianaUniversitySchoolof Medicine,Indianapolis,IN,USA KathrynEckert,M.D. DepartmentofPediatrics,UniversityofNevadaSchool ofMedicine,Reno,NV,USA ix x Contributors JoyceEngel,Ph.D.,O.T. DepartmentofRehabilitationMedicine,University ofWashingtonSchoolofMedicine,Seattle,WA,USA ClintField,Ph.D. DepartmentofPsychology,UtahStateUniversity,Logan, UT,USA JudyGarber,Ph.D. DepartmentofPsychologyandHumanDevelopment, VanderbiltUniversity,Nashville,TN,USA M.ElenaGarralda,M.D. DivisionofNeurosciencesandMentalHealth, ImperialCollegeLondon,London,UK SteveGraybar,Ph.D. UniversityofNevadaSchoolofMedicine,Reno,NV, USA AnthonyHains,Ph.D. DepartmentofEducationalPsychology,University ofWisconsin–Milwaukee,Milwaukee,WI,USA StuartHauser,M.D.,Ph.D. HarvardMedicalSchool,JudgeBakerChildren’s Center,Boston,MA,USA AngelaHuebner,Ph.D. DepartmentofHumanDevelopment,VirginiaTech University,FallsChurch,VA,USA AnneE.Kazak,Ph.D.,ABPP DepartmentofPsychology;Department ofPediatrics,UniversityofPennsylvaniaSchoolofMedicine,Children’s HospitalofPhiladelphia,Philadelphia,PA,USA AnnetteLaGreca,Ph.D. PsychologyDepartment,UniversityofMiami,Coral Gables,FL,USA MichaelLavin,Ph.D. Psychologist–privatepractice,Washington,DC,USA CarolB.Lindsley,M.D. DepartmentofPediatrics,UniversityofKansas MedicalCenter,KansasCity,KS,USA VincentA.Loffredo,M.D. DepartmentofPediatrics,UniversityofNevada SchoolofMedicine,Reno,NV,USA MaureenLyon,Ph.D. Children’sNationalMedicalCenter,Washington,DC, USA EleanorMackey,Ph.D. Children’sNationalMedicalCenter,Washington,DC, USA JohnD.Mahan,M.D. NationwideChildren’sHospital,TheOhioState University,Columbus,OH,USA KristinK.Marciel,Ph.D. PsychologyDepartment,UniversityofMiami,Miami, FL,USA DavidA.Maroof,M.A. FerkaufGraduateSchoolofPsychology,Yeshiva University,Bronx,NY,USA MichelleA.Meade,Ph.D. DepartmentofPhysicalMedicineandRehabilitation, UniversityofMichigan,AnnArbor,MI,USA Contributors xi AvaniC.Modi,Ph.D. DivisionofBehavioralMedicineandClinicalPsychology, CincinnatiChildren’sHospital,Cincinnati,OH,USA IfigeniaMougianis,B.A. Children’sHospitalofPhiladelphia,Philadelphia,PA, USA D.ColetteNicolaou,Ph.D. Children’sHospitalLosAngeles,LosAngeles,CA, USA KathleenO’ConnorM.D. DepartmentofPediatrics,UniversityofNevada SchoolofMedicine,Reno,NV,USA WilliamT.O’Donohue,Ph.D. DepartmentofPsychology,Universityof Nevada,Reno,Reno,NV,USA EmilyA.O’Hara PsychologyDepartment,DrexelUniversity,Philadelphia,PA, USA DianaQuintero,M.D. MedicalCollegeofWisconsin,Milwaukee,WI,USA AlexandraL.Quittner,Ph.D. DepartmentofPsychology&Pediatrics, UniversityofMiami,Miami,FL,USA MichaelA.Rapoff,Ph.D. DepartmentofPediatrics,UniversityofKansas MedicalCenter,KansasCity,KS,USA HelenRozelman,Ph.D.,LMSW SternCollegeforWomen,YeshivaUniversity, NewYork,NY,USA;DepartmentofPediatrics,NewYorkUniversity,School ofMedicine,NewYork,NY,USA LisaSchwartz,Ph.D. Children’sHospitalofPhiladelphia,Philadelphia,PA, USA BrandynM.Street DepartmentofPsychologyandHumanDevelopment, VanderbiltUniversity,Nashville,TN,USA LaurenWoodwardTolle,M.A. DepartmentofPsychology,University ofNevada,Reno,NV,USA SarahTornichioMSW,LSW NationwideChildren’sHospital,Columbus,OH, USA GaryA.Walco,Ph.D. TheDavidCenterforChildren’sPainandPalliativeCare, HackensackUniversityMedicalCenter,Hackensack,NJ,USA;Departmentof Pediatrics, University of Medicine and Dentistry of New Jersey, New Jersey MedicalSchool,Newark,NJ,USA MarianneZ.Wamboldt,M.D. UniversityofColoradoatDenverandHealth SciencesCenter,Aurora,CO,USA DorothyWarner,Ph.D. HarvardMedicalSchool,JudgeBakerChildren’s Center,Boston,MA,USA Part I Basic Issues
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