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Assessing Children's Well-Being: A Handbook of Measures PDF

324 Pages·2003·14.06 MB·English
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Assessing Children's Well-Being A Handbook of Measures This page intentionally left blank Assessing Children's Weil-Being A Handbook of Measures Sylvie Naar-King, PhD Deborah A. Ellis, PhD Wayne State University School of Medicine Maureen A. Frey, PhD, RN Children's Hospital of Michigan LAWRENCE ERLBAUM ASSOCIATES, PUBLISHERS 2004 Mahwah, New Jersey London h No part of this book may be reproduced in any form, by photostat, microfilm, retrieval system, or any other means, without prior written permission of the publisher. Lawrence Erlbaum Associates, Inc., Publishers 10 Industrial Avenue Mahwah, NJ 07430 Cover design by Sean Sciarrone Library of Congress Cataloging-in-Publication Data Child assessment in pediatric settings : handbook of measures for health care professionals / [edited by] Sylvie Naar-King, Deborah A. Ellis, Maureen Frey. p. cm. Includes bibliographical references and index. ISBN 0-8058-3173-8 (hbk.: alk. paper) 1. Children—Medical examinations—Handbooks, manuals, etc. 2. Children—Diseases—Diagnosis—Handbooks, manuals, etc. 3. Child development—Testing—Handbooks, manuals, etc. 4. Medical screening— Methodology—Handbooks, manuals, etc. I. Naar-King, Sylvie. II. Ellis, Deborah A. III. Frey, Maureen A. RJ50.C479 2003 618.92W5—dc21 2002041680 Books published by Lawrence Erlbaum Associates are printed on acid-free paper, and their bindings are chosen for strength and durability. Printed in the United States of America 10 9 8 7 6 5 4 3 2 1 To our families and our mentor, Patricia T. Siegel S.N.K. and D.A.E. To Jennifer, Andy, Shannon, and Sam M.A.F. This page intentionally left blank Primary Authors Sylvie Naar-King, Department of Psychiatry and Behavioral Neuro- sciences, Wayne State University School of Medicine, Detroit, Michigan Deborah A. Ellis, Department of Psychiatry and Behavioral Neuro- sciences, Wayne State University School of Medicine, Detroit, Michigan Maureen A. Frey, PhD, Department of Nursing Administration, Chil- dren's Hospital of Michigan, Detroit, Michigan Contributing Authors Ronald T. Brown, PhD, College of Health Professions, Medical University of South Carolina, Charleston, South Carolina Dennis Drotar, PhD, Department of Pediatrics, Rainbow Babies and Chil- dren's Hospital and Case Western Reserve University School of Medi- cine, Cleveland, Ohio Sheila M. Eyberg, PhD, ABPP, Department of Clinical and Health Psy- chology, University of Florida, Gainesville, Florida Michelle Macias, MD, Department of Pediatrics, Medical University of South Carolina, Charleston, South Carolina Jocelyn McCrae, PhD, Department of Hematology/Oncology, Children's Hospital of Michigan, Detroit, Michigan vii viii AUTHORS Lilless McPherson Shilling, PhD, College of Health Professions, Medical University of South Carolina, Charleston, South Carolina Arthur Robin, PhD, Department of Psychiatry and Behavioral Neuro- sciences, Wayne State University School of Medicine, Detroit, Michigan Conway F. Saylor, PhD, Department of Psychology, The Citadel, Charles- ton, South Carolina Patricia T. Siegel, PhD, Department of Psychiatry and Behavioral Neuro- sciences, Wayne State University School of Medicine, Detroit, Michigan Anthony Spirito, PhD, Department of Psychiatry and Human Behavior, Brown Medical School, Providence, Rhode Island Branlyn E. Werba, PhD, Department of Psychology, Children's Hospital of Philadelphia, Pennsylvania Contents Contributors vi Preface xi Chapter 1 Health Status and Quality of Life 1 Introduction by Dennis Drotar 1 Child Health and Illness Profile 4 Child Health Questionnaire 7 Functional Disability Inventory 9 Functional Status II (R) 11 Functional Status Questionnaire 13 Health And Daily Living—Youth Form 15 Pediatric Evaluation of Disability Inventory 17 Pediatric Quality of Life Inventory 19 WeeFIM 21 Chapter 2 Adherence 27 Introduction by Maureen A. Frey 27 Daily Phone Diary 29 Family Responsibility Questionnaire 31 Medication Electronic Monitoring System 33 Medical Compliance Incomplete Stories Test 35 Twenty-Four-Hour Recall Interview 37 Chapter 3 Pain Management 41 Introduction by Jocelyn McCrae 41 Bieri Faces Scale 43 Child-Adult Medical Procedure Interaction Scale-Revised 45 Children's Hospital of Eastern Ontario Pain Scale 46 ix

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