Asperger's Syndrome And Sexuality: From Adolescence Through Adulthood PDF
Preview Asperger's Syndrome And Sexuality: From Adolescence Through Adulthood
Asperger’s Syndrome and Sexuality of related interest Asperger’s Syndrome A Guide for Parents and Professionals Tony Attwood ForewordbyLornaWing ISBN1853025771 Asperger Syndrome in Adolescence Living with the Ups,the Downs and Things in Between Edited by Liane Holliday Willey ForewordbyLukeJackson ISBN1843107422 Freaks,Geeks and Asperger Syndrome A User Guide to Adolescence Luke Jackson ForewordbyTonyAttwood ISBN1843100983 Pretending to be Normal Living with Asperger’s Syndrome Liane Holliday Willey ForewordbyTonyAttwood ISBN1853027499 Asperger Syndrome and Long-Term Relationships Ashley Stanford ForewordbyLianeHollidayWilley ISBN1843107341 Aspergers in Love Couple Relationships and Family Affairs Maxine Aston ForewordbyGiselaandChrisSlater-Walker ISBN1843101157 Sex,Sexuality and the Autism Spectrum Wendy Lawson ForewordbyGlenysJones ISBN1843102846 Asperger’s Syndrome and Sexuality From Adolescence through Adulthood Isabelle Hénault Foreword by Tony Attwood Jessica Kingsley Publishers London and Philadelphia The following material is reproduced with kind permission from the authors and publishers: Box 2.2 on pp.52–3 (adapted from Tréhin, 2002) copyright © Chantal Tréhin. Extract pp.87–88 (from Stonehouse, 2002) and poem on pp.88–89 (from Stonehouse, forthcoming) copyright © Martine Stonehouse. Extract p.95 (from Hedgcock, 2002) copyright © Ron Hedgcock. Source material (from Durocher and Fortier, 1999) on pp.115–116, 120–124, 125–127, 129–134, 135–141, 142, 146–152, 153–158, 159–167, 168–173, 174, 177–178, 181–182 copyright © Durocher and Fortier and Le Centre jeunesse de Montréal – Institut universitaire. Source material for Worksheets 6.1 (p.143) and 6.2 (p.144–145) (Lemay, 1996) copyright © Michel Lemay and Pavillon du Parc. Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform(includingphotocopyingorstoringitinany mediumbyelectronicmeansandwhetherornottransientlyorincidentallytosomeotheruseofthispublication)withoutthewritten permissionofthecopyrightownerexceptinaccordancewiththeprovisionsoftheCopyright,DesignsandPatentsAct1988orunder thetermsofalicenceissuedbytheCopyrightLicensingAgencyLtd,90TottenhamCourtRoad,London,EnglandW1T4LP. Applicationsforthecopyrightowner’swrittenpermissiontoreproduceanypartofthispublicationshouldbeaddressedtothepublisher. Warning: The doing ofan unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. The right ofIsabelle Hénault to be identified as author ofthis work has been asserted by her in accordance with the Copyright, Designs and Patents Act 1988. First published in 2006 by Jessica Kingsley Publishers 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Isabelle Hénault 2006 Foreword copyright © Tony Attwood 2006 Translation by Julie Larouche Front cover photograph by Amélie Bolduc-Monette Library ofCongress Cataloging in Publication Data Hénault, Isabelle, 1973- Asperger’ssyndromeandsexuality:fromadolescencethroughadulthood/IsabelleHénault;forewordbyTony Attwood.— 1st American pbk. ed. p. cm. Includes bibliographical references and index. ISBN-13: 978-1-84310-189-5 (pbk. : alk. paper) ISBN-10: 1-84310-189-0 (pbk. : alk. paper) 1. Asperger’s syndrome. 2. Autism. I. Title. RC553.A88H46 2006 618.92’858832—dc22 2005024310 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 84310 189 5 ISBN-10: 1 84310 189 0 ISBN pdfeBook: 1 84642 235 3 Printed and Bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear Contents Acknowledgements 8 Foreword by Tony Attwood 9 Introduction 11 PART 1:EXPLORING SEXUALITY AND ASPERGER’S SYNDROME 13 1. Asperger’s Syndrome and sexual development 15 Asperger’s Syndrome 15 Sexuality and Asperger’s Syndrome 18 Puberty 19 Contraception 25 Social influences 27 Sexual behaviour 30 2. Inappropriate sexual behaviours:Comprehension and intervention 38 Precipitating and maintaining factors 38 Understanding inappropriate sexual behaviours 50 Restricted interests and sexual obsessions 50 Masturbation 57 Sexual assault and criminal acts 58 Sexual delinquency 60 Conclusion 62 3. Social skills 64 Tools to improve social skills 66 Visual contact 67 Affective behaviours 67 Communication 68 Emotions 70 Automatic thoughts 71 Theory of mind 74 Conclusion 75 4. Sexual diversity and gender identity 76 Sexual diversity 76 Sexual orientation 79 Gender identity 83 5. Couples,intimacy,and sexuality 90 Intimacy 90 Sexual desire 91 Affective communication 93 Couple dynamics 95 Empathy 96 Sexual intimacy 97 6. The sociosexual education programme 101 Sexual education programmes 101 The structure of the sociosexual education programme for individuals with Asperger’s Syndrome 103 How the sociosexual education programme helps individuals with Asperger’s Syndrome 103 Evaluation of the programme and results 106 PART 2:PROGRAMME FOR THE DEVELOPMENT OF SOCIOSEXUAL SKILLS 107 Introduction:How to use the programme 109 Workshop 1:Assessment and introduction to the programme 111 Workshop 2:Introduction to sexuality and communication exercises 118 Workshop 3:Love and friendship 120 Workshop 4:Physiological aspects of sexuality 125 Workshop 5:Sexual relations and other sexual behaviours 135 Workshop 6:Emotions 142 Workshop 7:STDs,HIV,and prevention 146 Workshop 8:Sexual orientation 153 Workshop 9:Alcohol,drugs,and sexuality 159 Workshop 10:Sexual abuse and inappropriate sexual behaviours 168 Workshop 11:Sexism and violence in romantic relationships 174 Workshop 12:Managing emotions,theory of mind,and intimacy 179 Appendix:The sexual profile of adults with Asperger’s Syndrome: The need for support and intervention 183 Study 183 Results 184 Discussion 189 Further analyses 190 The need for education and support 191 References,further reading,and resources 193 Subject index 202 Author index 207 LIST OF FIGURES,BOXES AND TABLES Figure 1.1 Checklist for daily hygiene routine 24 Figure 3.1 Self-monitoring sheet 72 Figure 3.2 Example of a completed self-monitoring sheet 73 Figure A.1 Sexual profile of adults with Asperger’s Syndrome 185 Box 1.1 Instructions for male masturbation 35 Box 1.2 Instructions for female masturbation 36 Box 2.1 Factors influencing inappropriate sexual behaviour 51 Box 2.2 Possible causes of inappropriate behaviours in individuals with Asperger’s Syndrome 52–53 Box 5.1 Couple homework 94 Box 5.2 Sensate focus 100 Table 1.1 Women’s bra and dress sizes 23 Table 2.1 Side effects of medication on sexuality and sociability 42 Table A.1 Mean scores and standard deviations obtained on subscales of the DSFI 185 Acknowledgements MygreatestrespectgoestoDrTonyAttwoodforhisinspirationandgenerosity;hehas made it possible for me to fulfil my greatest dreams. A special thank you to Julie Laroucheforherprofessionalismandherfriendshipthatissodeartome.Thanksgoto Jessicaforherconfidenceinmeandherpatiencethroughouttherealizationofthispro- ject.Iwouldalsoliketoexpressmygratitudetomyparents,JeanandJeanne,andtomy sister,Geneviève.Theyhavesupportedandencouragedmetopursuemypathfromthe verybeginning.Theyneverceasedtobelievethateverythingispossible.Allmygrati- tudegoestoCharles,mylove.Hisinvolvementhasbeenextraordinaryandsomotivat- ing.His encouragingcommentsandhumour wereagreathelpduring thewriting of this book. A very special thank you goes to you, Charles. I am grateful to Georges, Marc-Antoine, Stef, Martine, Ron, and all the individuals with Asperger’s Syndrome whoagreedtobroachsuchapersonalandsensitivetopicwithsuchsincerityandopen- ness. My thanks also extend to Lise Durocher and Martine Fortier for permission to adaptactivitiesfromtheirsexualeducationprogramme,toPatrickPapazianforideas andcollaboration,andAmélieBolduc-Monetteforherphotographicsavvy.Finally,I wouldliketoacknowledgeDrNormandGiroux,whointroducedmetothisareaand who has continued to guide me over the last six years. I dedicate this book to him. 8 Foreword PeoplewithAsperger’sSyndrome(AS)havethesamesexualinterests,issuesand diversity as occur in the general population. However, adolescents and adults with AS are differentinterms of the abilityto ‘read’ and understand the subtle andcomplexthoughtsandemotionsof anotherpersonandtoeffectivelycom- municate their own inner thoughts and feelings. There are also differences in sensoryperception,previousrelationshipexperiencesandtheunderstandingof social conventions. These differences are obviously going to have a significant impact on the development of sexuality for the person with AS. While we are graduallyincreasingourknowledgebaseandexpertiseonAS,thereisaseparate andextensiveknowledgebaseandexpertiseonsexualityinthegeneralpopula- tion. What has been missing is someone with qualifications and clinical expertiseinbothareastocombineanunderstandingofASandsexualityandto write the seminal book on sexual education and intervention programmes. Isabelle Hénault has now written that book. Theauthorfirstprovidesfactualinformationonthephysiologicalandpsy- chological changes associated with puberty, the development of intimate rela- tionships and the range of human sexuality that is relevant to adolescents and adultswithAS.PeoplewithASenjoyincreasingtheirknowledgeandacquiring andrememberingfacts,buttheareaofsexualityismorethanacollectionoffacts anddata.Thereareissuesofself-perceptionandself-esteem,attitudesandpreju- dices, past experiences, empathy and intimacy. Isabelle Hénault takes a broad perspectiveofsexualityandappliesherextensiveandintuitiveknowledgeofAS todevelopeffectivesexualeducationprogrammesthatwillimprovethequality oflifeandrelationships,notonlyofpeoplewithASbutalsothosewhodevelop an intimate relationship with them. Not only will psychologists and educators implement the programmes developed and evaluated by Isabelle Hénault, but 9
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