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Asian & Pacific Islander National Cancer Survivors Network Cancer Resource Directory (APINCSN) PDF

2006·5.3 MB·English
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Historic, Archive Document Do not assume content reflects current scientific knowledge, policies, or practices. & Asian Pacific Islander Cancer National Survivors Network Cancer Resource Directoru Acknowledgements TheAsian&PacificIslanderNationalCancerSurvivors Network (APINCSN) is national network ofcancer survivors, caregivers, advocates, health care provid- ers, researchers, community organizations and cancer programs that are concerned about the issue ofcancer intheAsianAmericanandPacificIslander(AAPI)Com- munity. Foundedin 1997, APINCSNbecame aprogram ofthe Asian & Pacific Islander AmericanHealthForum (APIAHF),whichisanationalhealthpolicyandadvocacy organizationwhosemissionistoenableAsianAmericans andPacificIslanderstoattainthehighestpossiblehealth andwell-being. ThisAPINCSNCancerResourceDirectorywassupportedby Grant/Cooperative Agreement Number U58/CCU923071-02 fromtheCentersforDiseaseControlandPrevention. 2•APINCSNCancerResourceDirectory mHocT)70CO Table of Contents Introduction 4 Purpose ofthe APINSCN CancerResource Directory 5 How to Use the APINSCN CancerResource Directory 5 Glossary 5 Program Organizations Listing (Alpabetical) 6 Index: Organizations by State 100 Organizations by Cancer Services 102 Organizations by Cancer/Site Served 113 Organizations by Ethicity/Racial Groups Served 117 Organizations by Language Served 128 C H-RC Libre 1101 aM/ootton Parkway, ouiftp 650 Rockville, MD 20852 1-800-444-6472 APINCSNCancerResourceDirectory•3 . Introduction The National Cancer Institute estimates that there are approximately 9.6 million AmericanswithahistoryofcancerwhowerealiveinJanuary2000. However, there isstillnoaccuratedataonthenumberofAAPIsaffectedby,livingwith,orsurviving cancer.ItisknownthatamongAsianAmericansandPacificIslanders(AAPIs),cancer deathshaveincreasedatafasterratecomparedtoanyotherracialandethnicpopula- tion. Forinstance,AmericanSamoanmenlivinginHawaiiandinCaliforniawereten timesmorelikelytobediagnosedwithNasopharyngealcancer,seventimesmorelikely tobediagnosedwithlivercancerandthreetimesmorelikelytobediagnosedwith stomachcancerascomparedtoWhiteAmericanMales.Factorssuchasacculturation, lowcancerscreeningrates, andlackofculturalsensitivitycontinuetoplaceatollon thecancermorbidityandmortalityratesofAAPIs. Ithasbeenreported that62% of AsianAmericanwomenovertheageof18reportedapaptestingthepastthreeyears, whichismuchlowerthanthatofnon-HispanicWhitewomen(82%) Yet, despite the rise incancer detection and treatmentmethodologies to address thegrowingrateofcancerintheUnitedStates, thereisalsoanincreasingdearthof education, preventative, treatment, andsupportservices thatareculturallyandlin- guisticallyappropriatetoservetheneedsofandthatareaccessibletovariousAAPI communities.ToincreasecommunityawarenessoforganizationsthatprovideAAPI specificresourcesandprovidehealthprofessionalswithatooltoimprovethequalityof theirpatientreferrals,thisresourceguidewasdevelopedwithacomprehensivelisting oforganizationsnationwide,profilingtheirlocation, cancerservices,andethnicand linguisticserviceofferings.Itisourhopethatthedevelopmentofthisresourceguide willbeinstrumentalinnarrowinggapsinhealthcarethatexistbetweenAAPIsand mainstream populations as well as encourage other AAPI-servingorganizations to increasetheirscopeofservicesandinfluencethroughAPIAHF. 4•APINCSNCancerResourceDirectory Purpose of the APINCSN Cancer Resource Directory TheAPINCSNCancerResourceDirectoryisacompilationoforganizationsthatoffer cancerservicesforAsianAmericanandPacificIslander(AAPI)communities.TheAPINCSN Cancer ResourceDirectoryprovides detailed information about some ofournetwork members,theAAPIcommunitiestheyserve,andthetypesofcancerservicestheyprovide. Cancerpatients,survivors, advocates,organizationsandhealthcareprofessionalshave requestedthedevelopmentofthisdirectorytoassistinpatientreferralstoculturallyand linguisticallyappropriatecancerservices. how to Use the APINCSN Cancer Resource Directory Thisdirectoryiscomprisedofanalphabeticallistingofnetworkmembersandorgani- zationswhoexpressedinterestinpromotingtheirresourcestothecommunitythrough alistinginthisguide.Eachorganizationhasbeenallottedonepagewiththefollowing information:contactinformation;cancerservices;cancer/siteserved;languageservices; ethnicitiesserved;regionscovered;andfeesforservices. In additionto individuallistings oforganizations, there is also anindexinwhich individualscansearchforanorganizationbycategory,suchasregion,cancerservices, cancersite,andethnicity. Ifyoufindanyerrorsinorwouldliketoupdateyourentryfortheonlineversionofthe APINCSNCancerResourceDirectory,pleasecontactus. Weareopentosuggestionsto improvetheusabilityoftheonlinedirectorytobestmeetyourneeds. Ifyouwouldliketobeincludedintheonline directoryinadditiontobecomingan APINCSNmember,pleasecontactNicoleKangat(415)[email protected]. Glossary AAPI-AsianAmerican&PacificIslander NHOPI-NativeAmerican&OtherPacificIslander NCI-NationalCancerInstitute NIH-NationalInstitutesofHealth APINCSNCancerResourceDirectory•5 Alameda County Medical Center 1411 E. 31stStreet Oakland, California 94602 Contact WilliamShanks, OncologyClinicalNurseSpecialist Oncology Hematology / Phone: (510)437-5099 Fax: (510) 436-5756 Email:[email protected] Areas Served Ethnicities Served County Chinese, exceptTaiwanese Vietnamese Cancer Services ClinicalTrials Languages Served Counseling Cantonese DiseaseManagement Vietnamese FinancialAdvice HospiceServices Fees Language/Translation Yes PrimaryHealthCare SupportGroups TreatmentOptions Site/Cancer(s) AllSites/Cancer 6•APINCSNCancerResourceDirectory Alliance for Prostate Cancer Prevention APGaP 15248S. TamiamiTrail,Suite 1000 Ft. Meyers,Florida 33908 Contact HankPorterfield, Chairman Phone: (239)415-9099 Fax: (239) 425-9090 Email:[email protected] Web:www.apcap.org Areas Served Ethnicities Served National AllAsian AllNHOPI Cancer Services HealthEducation Languages Served PolicyAdvocacy English Prevention Education / PrimaryHealthCare Fees Wellness No Site/Cancer(s) Prostate APINCSNCancerResourceDirectory•7 Alta Bates Summit Medical Center 450 30thStreet Oakland, California 94609 Contact MeriditheMendelsohn,AdministrativeDirector CarolAnnReadBreastHealthCenter Phone: (510) 869-8735 Fax: (510) 869-6105 Email: [email protected] Web: www.altabatessummit.org Areas Served Ethnicities Served County AllAsian All NHOPI Cancer Services AlternativeTherapy Languages Served ClinicalTrials English Counseling Detection Fees DiseaseManagement Yes HealthEducation PatientNavigation Prevention Education / ReferralServices Research Seminars Workshops / SupportGroups TreatmentOptions Wellness Site/Cancer(s) Breast 8•APINCSNCancerResourceDirectory

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