arthritis support network leader training kansas city, ks june 9, 2017

114 Pages·2017·6.5 MB·English

by  Arthritis Foundation

ARTHRITIS SUPPORT NETWORK
LEADER TRAINING
KANSAS CITY, KS
JUNE 9, 2017
Please be in your seats ready to go at
9:00 AM
Virtual Attendees please see Agenda email for login

Welcome
Haydee Sedlmeier
Director, Community Support Networks
Arthritis Foundation, Home Office
Welcome
2017 ASN Leader Training
Today’s Agenda
 Welcome/Opening - “10 Years and Growing”
 Understanding Psychological Adjustments to Chronic Disabilities: A
group leader’s guide to managing people
 Arthritis Foundation Help and Support when and where you need it
 Advocates in Action: Learn More about the Arthritis Foundation’s
Advocacy Program!
 Becoming a CiviCRM Wizard
 Everything you wanted to know about Fundraising and Local
Leadership Boards
 Got Facilitation Swagger? Techniques, Skills and Tips
 Sculpting your Patient Engagement Muscles
 Closing comments - We’ve come a long way baby!
Milestones
 2007 – AI launched 3 AI Support Groups – Phoenix, AZ Tucson AZ and
Kentuckyana
 2010 – we added West LA CA
 2012 – We grew to 8 AI Support Groups lead by 9 ORS – Phoenix, AZ, Tucson
AZ, Kyana, WLA CA, Jacksonville FL, Elgin IL, SW PA and Orange County CA. The
AISS Redesign team was hard at work on the development of the new Training
Program.
 January 2013 – AI launched the New AISS ORS Training Program
 December 2013 – we grew to 14 Support Groups led by 15 ORS
 June 2014 – we grew to 15 Support Groups led by 17 ORS
 May 2015 – we grew to 18 support groups led by 21 ORS and 4 AI Support
Groups compliant with the co-ORS model.
 December 2015 – we grew to 17 Support Groups led by 22 ORS serving and 5
Support Groups were compliant with the co-leader model.
 We had launched new groups in Sacramento, CA, Berks County PA,
Pittsburgh PA, Dallas TX, Fresno CA, San Diego CA, Fort Wayne IN & added
coleaders into San Fernando Valley CA, and Seattle WA
Milestones
 January 2016 AI merged into the Arthritis Foundation
 May 2016 – we grew to 22 ASN led by 28 ASN Leaders, 6 ASN were
compliant with the co-leader model.
 We launched new ASNs in Madison WI, Milwaukee WI, San Antonio TX,
Houston TX, Springfield IL, and Las Vegas. NV
 December 2016 – we grew to 29 ASNs led by 37 ASN Leaders, 8 ASN were
compliant with the co-leader model.
 We launched new ASN in Denver CO, South Miami FL, Maple Grove
MN, Harrisburg PA, Downeast ME, Augusta GA, Chicago IL, Columbia
SC, St. Louis MO, Chicopee MA, Tuscaloosa AL, and Bergen County NJ.
Coleaders were added to Houston TX, Chicago IL, Tuscaloosa AL, and
Las Vegas NV,
2016 HIGHLIGHTS
Walk to Cure
People
Event Name Team Captain Team Total Recruited
2016 Walk to Cure Arthritis -Tampa, FL Shelley Fritz $3,270.00 26
2016 Walk to Cure Arthritis -Greater Los Angeles Haydee Sedlmeier $2,700.00 8
2016 Walk to Cure Arthritis -Arizona Wendy Hawkins $2,195.00 19
2016 Walk to Cure Arthritis -North Texas Brenda Gordon $1,897.50 4
2016 Walk to Cure Arthritis -Dane County, WI Kirsten Schultz $1,120.00 8
2016 Walk to Cure Arthritis -Nashville, TN Melissa Hafeli $875.00 8
2016 Walk to Cure Arthritis -Jacksonville Karen Thigpen $305.00 1
2016 Walk to Cure Arthritis -TriValley, CA Rocio Lemus $230.00 6
2016 Walk to Cure Arthritis -Atlanta, GA Kevin Purcell $135.00 2
2016 Walk to Cure Arthritis -Miami Linda Kasyan $115.00 2
2016 Walk to Cure Arthritis -Orange County & Inland Empire Haydee Sedlmeier $10.00 1
11 $12,852.50 85
2016 HIGHLIGHTS
Jingle Bell Run
Total People
Team Name Team Captain 2016 Total $ Recruited
Arthritis Introspecitve Tucson Kevin Purcell $2,510.00 5
Arthritis Introspective Greater Dallas - Thrivin' and Jingling Brenda Gordon $1,642.50 12
Arthritis Support Network Greater LA Haydee Sedlmeier $1,275.00 4
Jammin' with Jessi Jessi Pashia $1,042.00 11
Deserae
Jingling Jedis $925.00 6
Constantineau
AI Chicagoland Candice Dusset $730.00 7
Team Constien Deb Constien $705.00 7
Arthritis Support Network - Seattle kelly Bonilla Toledo $640.00 2
Angie's Arthritis Warriors Angie Irvin $380.00 3
Rowdy Rudolph's Casey Brasher $290.00 8
AI Jingle in our Jammies Kevin Purcell $205.00 3
Rudolph's RAcers Kathy Skidgel $205.00 4
Arthritis Support Network Houston Vince Santos $192.00 2
No Rheum for Pain Shelley Fritz $150.00 4
Arthritis Avengers Stefanie Remson $113.00 4
15 $11,005 82
2016 HIGHLIGHTS
2016 Successes
 GREW - Trained 22 new Arthritis Support Network Leaders and launched 18 new Arthritis Support
Networks
 Grew active ASN participants to 352 vs prior year 287
 Grew ASN mailing list to 1156 vs prior year 723
 Grew AI mailing list to 2569
 Hosted 166 ASN events vs prior year 125
 7 participants from ASN attended the Conference of Champions (5 leaders, 1 ASN intern and 1 ASN
participant
 Hosted an In person annual ASN Leader training - all 22 ASN Leaders participated either in person,
remotely or via make up
 Published quarterly newsletter and a special arts edition.
 Educated ASN Leaders in the AF
 Enhanced new leader training and added AF tools and program info
 Introduced 36 group leaders to local CED to begin building local market relationships
 Implemented new cobranded marketing materials – rack card, business card and table banner
 Fundraising: 23,857.50
AI’S 2016 (5/16)
OUTREACH RELATIONS SPECIALISTS TEAM
Samantha Johnson Kevin Purcell Haydee Sedlmeier Karen Thigpen Kathy Skidgel Rose Adams
Wendy Hawkins Susan Zimmerman West LA CA Jacksonville FL Placerville, CA Venango County PA
Phoenix AZ Tucson AZ
Valerie Webster Lorraine Carlson Nomi Harris Brenda Eaken April Snow Brenda Gordon Carolyn Walker
Sharon Steiner Rocio Lemus Howard County MD Berks County, PA Summer Gray Frisco, TX Fresno, CA
San Fernando Valley CA San Francisco Bay CA
Seattle WA
Sarah Conway Heather Reyna Deb Constien Kirsten Schultz DeseraeConstantineau Jennifer Walker Vince Santos Vonda Laffey
North San Diego, CA Fort Wayne, IN Madison, WI Madison, WI Milwaukee, WI San Antonio, ,TX Houston, TX Springfield, IL