Arthritis Care: Changing the lives of people with arthritis

60 Pages·2016·1.68 MB·English

ANNUAL REPORT 2015
Arthritis Care:
Changing the lives of
people with arthritis
Yolande, living with rheumatoid arthritis
Helping people to live well with arthritis
arthritiscare.org.uk
Registered charity numbers 206563 and SC038693
II arthritiscare.org.uk
Contents
Chair’s Report 2
Chief Executive’s Report 3
Our Patron, The Duke of Westminster 4
Jane Asher, President 4
Arthritis Care’s reach in 2015 6
Highlights from our year 7
Support for young people 8
Support for those in work 10
Support through volunteering 12
Support for those facing surgery 14
Support for those living in isolation 16
Looking forward to 2016 18
Our funding 20
Thank you 22
Can you help us? 23
Report and financial statements 24
Report of the Trustees 25
Independent auditors’ report 34
Statement of Financial Activities 36
Balance sheet 37
Cashflow Statement 38
Notes to the financial statements 39
arthritiscare.org.uk 1
Chair’s Report
Welcome to our Annual Report for 2015. I do hope
you enjoy reading about how you have helped us
make a difference to the lives of people with arthritis
across the UK over the last 12 months. None of what
we do would be possible without our supporters,
funders, members, volunteers, partners and staff
– I thank you all for your support over the last year.
I would also like to extend think there’s not much that
thanks to my fellow Trustees can be done. This results
for all their hard work. 2015 in many people suffering
was a challenging year for unnecessarily. Arthritis can reaching around 600,000
charities with significant rob a young person of their people who could benefit
negative press coverage childhood; stop a promising from our support. We are
highlighting some poor career before it has even building a powerful ambition
fundraising practice. Our started, and ruin the hard to be there for everyone with
Board has shown that it earned retirement of many. arthritis who needs us, both
is committed to honesty, now and in the future, and
transparency and respect Arthritis Care is committed hope you will continue to
for all those that choose to to supporting those whose stand with us to make this
support us, and we do not lives have been damaged vision a reality.
take your generosity for by the pain of arthritis and
granted. Working alongside the isolation that it may I hope you enjoy reading
our staff we know we must cause. We help people to about what your support
ensure that Arthritis Care recognise the early signs of helped us achieve in 2015,
continues to deliver the arthritis, get diagnosed and and will join us in helping
highest possible legal and take action to manage the many more people live well
ethical standards. We will impact arthritis can have on with arthritis, giving them the
continue to listen to you, our everyday life. Our particular support, understanding and
donors and supporters and strength as a charity is our hope to lead a better and
raise the funds needed to ability to connect people more independent life in the
provide the vital support we living with arthritis with year ahead.
are here to deliver. those who have a similar
With best wishes
This support is so needed experience to them, which
because arthritis continues we have found can lead to
to be misunderstood. remarkable transformations
Affecting both young and in quality of life.
old, arthritis is an incredibly Gordon Anderson
common condition, yet many Despite this, we know that Chair
people still see it as an we need to do more. We
inevitable part of ageing and estimate we are still only
2 arthritiscare.org.uk
Chief Executive’s Report
From the moment I started working here, I have
been impressed by the deep seated commitment of
our staff and volunteers, many of whom have direct
and personal experience of arthritis.
This helps us to stay true to their isolation. We expect
one of our key values – never this number to grow as these
losing sight of what it means to services develop.
live with arthritis. And when I
hear about the difference that The second was our Young
Arthritis Care has made to the People and Families service
lives of people like Jill, whose in Birmingham and London,
pain and lack of sleep were which worked closely with booklets being downloaded
so terrible that she had to give three specialist paediatric and from the website, with over
up her job and then her home adolescent rheumatology 6,000 being downloaded per
because she could not afford centres. These services are month, a significant increase
her mortgage, I am inspired to expanding our existing, highly on the previous year. We could
reach out to others who could successful work in Scotland not have achieved any of this
benefit from our work. Jill’s life and Northern Ireland and our without our fantastic supporters
is back on track now because developing profile and service in and volunteers. I would like to
of Arthritis Care – however Wales. The services in England personally thank everyone who
there are many more people will provide the launchpad to so generously gave their time,
facing challenges like Jill that significantly increase the number energy and money to Arthritis
we are not reaching. of young people and families we Care; together we have made
can reach in coming years. such a difference.
This year has been about
reaching more people like Jill The third is our new website. We I hope you feel as positive as I do
and I’d like to mention three key know that so many people turn when you read about our work.
milestones. to the internet when they need We know we have so much
information, and we wanted to more to do, which your continued
The first was the roll out of ensure that what they found support can help make possible.
Living Well with Arthritis, was clear and accessible. Please do contact me if you
our menu of local services Our new site was launched would like to know more about
providing individual and last October, and provides a our achievements or plans for
group support delivered by user friendly platform full of the future.
our staff and volunteers. easily navigable information.
With my best wishes
These services, alongside The most popular areas are
our national Helpline and those that give comprehensive,
local branches and groups authoritative information about
helped us support over 26,500 arthritis and how to live well
people to better manage their with the condition. Since the
pain, improve their health relaunch we have seen a rise Judi Rhys
and well-being and reduce in the number of information Chief Executive
arthritiscare.org.uk 3
Did you know...
The Duke of Westminster, Patron,
7.5
IP aamtro dne. lMighy tpeedr tsoo cnoanl etinxpueer mieny cseu popf orhrte fuomr Aatrothidr itaisrt hCraitrise mine many sr othlea ta Is AROUND SS TTRREESSSS && MILLION
am only too aware of the pain and difficulties arthritis can cause. 10 MILLION AANNXXIIEETTYY workingdaysare
I look forward to seeing the continued expansion of Arthritis
losteachyeardue
Care’s work, especially the tremendous support that volunteers people in the UK have a form of tomusculoskeletal
are able to extend to those in their own communities. arthri�s, of which almost 700,000 condi�ons,secondonlyto
stressandanxiety.5
With very best wishes, have rheumatoid arthri�s.1
%

0 E
S
5 A
E Projec�ons suggest that
R
Musculoskeletal condi�ons C
N the number of people with
I
His Grace Gerald Cavendish Westminster KG CB CVO OBE TD CD DL account for the FOURTH
arthri�s is set to increase
LARGEST NHS programme
by over 50% by 2030.2
budget spend in England at
about £5 BILLION.4
Jane Asher, President
EACH YEAR ABOUT 20% OF THE GENERAL
I’m very proud of the wonderful staff we have at Arthritis Care POPULATION CONSULT A GP ABOUT A
across the UK, but we wouldn’t be able to achieve a fraction MUSCULOSKELETAL PROBLEM SUCH AS ARTHRITIS.
of all the things we do without the amazing hard work and THAT’S OVER 100,000 CONSULTATIONS EVERY DAY.3
dedication of our volunteers, and this year I want to take this
chance to thank personally all those of you who are part of this
quiet and unacknowledged team. There are almost 900 of you There are over 86,000 hip and over 90,000 knee replacements each year.6
out and about in your local communities delivering practical help
and support, and we’ve worked out that last year you gave over
Thereisastrongassocia�on
41,040 hours of your time: that’s 5,863 days – the equivalent
betweendepressionand
Musculoskeletal condi�ons
of 27 full time staff. The sheer number of you willing to give
musculoskeletalcondi�ons.
are the largest contributor
up your time to do this is incredible, and, together with your
68%
understanding of arthritis, your ability to empathise and your ofpeoplewitharthri�s to disability in the UK,
reportdepressionwhentheir
huge knowledge, makes you invaluable to us. accoun�ng for 31% of all
painisatitsworst.7
years lost due to disability.9
I know that we would be not be the same organisation without this
vital local support, and I’d like you to know just how grateful we
are. On behalf of those who live with the cruel condition of arthritis
THE WORLD HEALTH ORGANISATION
I thank you all from the bottom of my heart.
describesmusculoskeletalcondi�onsasthe
With my best wishes as always ‘leadingcausesofmorbidityanddisability,
givingrisetoenormoushealthcare
expendituresandlossofwork’.8
REFERENCES:
Jane Asher 1.www.rheumatology.org.uk/pa�ent_informa�on/simple_tasks/did_you_know.aspx2.HLSelectCommi�ee(2013),ReadingforAgeing?3.Arthri�sResearchUKNa�onalPrimaryCare
Centre,KeeleUniversity(2009),MusculoskeletalMa�ers.4.NHSEnglandProgrammeBudge�ngData(2012-3).Accessedatwww.england.nhs.uk/resources/resources-for-ccgs/prog-
President budge�ng/5.Health&SafetyExecu�ve(2012),AnnualSta�s�csReport2011/126.Na�onalJointRegistryforEngland,WalesandNorthernIreland(2014).11thAnnualReport.Parttwo
includingdataonclinicalac�vityonlineatwww.njrreports.org.uk7.Arthri�sCare(2011).Arthri�sHurts:Theemo�onalpainofarthri�s.8.WorldHealthOrganisa�on(2016),Chronic
4 arthritiscare.org.uk diseasesandhealthpromo�on:chronicrheuma�ccondi�ons:www.who.int/chp/topics/rheuma�c/en/ 9.Murray,C.etal,UKhealthperformance:findingsoftheGlobalBurdenof
DiseaseStudy2010,Lancet381:9871,997-1020
Did you know...
7.5
AROUND SS TTRREESSSS && MILLION
10 MILLION AANNXXIIEETTYY workingdaysare
losteachyeardue
people in the UK have a form of tomusculoskeletal
arthri�s, of which almost 700,000 condi�ons,secondonlyto
stressandanxiety.5
have rheumatoid arthri�s.1
%
0 E
S
5 A
E Projec�ons suggest that
R
Musculoskeletal condi�ons C
N the number of people with
I
account for the FOURTH
arthri�s is set to increase
LARGEST NHS programme
by over 50% by 2030.2
budget spend in England at
about £5 BILLION.4
EACH YEAR ABOUT 20% OF THE GENERAL
POPULATION CONSULT A GP ABOUT A
MUSCULOSKELETAL PROBLEM SUCH AS ARTHRITIS.
THAT’S OVER 100,000 CONSULTATIONS EVERY DAY.3
There are over 86,000 hip and over 90,000 knee replacements each year.6
Thereisastrongassocia�on
betweendepressionand
Musculoskeletal condi�ons
musculoskeletalcondi�ons.
are the largest contributor
68%
ofpeoplewitharthri�s to disability in the UK,
reportdepressionwhentheir
accoun�ng for 31% of all
painisatitsworst.7
years lost due to disability.9
THE WORLD HEALTH ORGANISATION
describesmusculoskeletalcondi�onsasthe
‘leadingcausesofmorbidityanddisability,
givingrisetoenormoushealthcare
expendituresandlossofwork’.8
REFERENCES:
1.www.rheumatology.org.uk/pa�ent_informa�on/simple_tasks/did_you_know.aspx2.HLSelectCommi�ee(2013),ReadingforAgeing?3.Arthri�sResearchUKNa�onalPrimaryCare
Centre,KeeleUniversity(2009),MusculoskeletalMa�ers.4.NHSEnglandProgrammeBudge�ngData(2012-3).Accessedatwww.england.nhs.uk/resources/resources-for-ccgs/prog-
budge�ng/5.Health&SafetyExecu�ve(2012),AnnualSta�s�csReport2011/126.Na�onalJointRegistryforEngland,WalesandNorthernIreland(2014).11thAnnualReport.Parttwo
includingdataonclinicalac�vityonlineatwww.njrreports.org.uk7.Arthri�sCare(2011).Arthri�sHurts:Theemo�onalpainofarthri�s.8.WorldHealthOrganisa�on(2016),Chronic
diseasesandhealthpromo�on:chronicrheuma�ccondi�ons:www.who.int/chp/topics/rheuma�c/en/ 9.Murray,C.etal,UKhealthperformance:findingsoftheGlobalBurdenof
DiseaseStudy2010,Lancet381:9871,997-1020
How we helped people in 2015
600,000
reached with
information
81,515
and support
information booklets and
learnt new ways
factsheets distributed
to manage their
75%
condition after
visiting an Arthritis
Care drop-in
26,547
benefitted
from individual
13,000
and group
support
found support through
Arthritis Care’s
online community
Thank you
We simply couldn’t do
this without you
6 arthritiscare.org.uk
Highlights from our year
Our goal is to reach
When I got in touch with Arthritis Care I discovered
everyone who needs
self-management. It is a hard concept to explain, but for
us, providing access
me it is finding what allows me to take control and live a
to information and full and active life, regardless of my arthritis.
support to help people
live well with arthritis. Sally, caller to the Helpline
When you consider just
Self-management support is at the heart of our services. We
how common arthritis
help people take control of their condition by acquiring the
is, you realise just how
knowledge, understanding and techniques to live full and active
much there is for the lives, regardless of their arthritis. According to research, people
charity to do. who have received self-management support tend to be more
confident and less anxious. They make fewer visits to the doctor,
can communicate better with health professionals, to get their
needs met, take less time off work, and are less likely to require
admission to hospital1.
In 2015 we looked at what we do well with the goal of doing
more of it. A key focus in 2015 was the roll out of our Living Well
with Arthritis service, which builds on our already successful
network of volunteers who deliver support across the UK.
We reach out to people at every stage of their journey,
whether they think they have the early signs of arthritis,
have been recently diagnosed, or have been living with
it for some time. The following pages showcase just
some examples of what we do and how we’ve helped
people.
1 Source: The Health Foundation (2011): Helping People help themselves.
arthritiscare.org.uk 7
Support for
young people
Arthritis is not solely a condition which affects
older people; juvenile arthritis is an auto-immune
condition (which means the body’s own immune
system attacks cells and tissues) that targets the
joints, resulting in severe pain, stiffness and swelling
that has a life-changing impact on around 27,000
young people under the age of 25 and their families
in the UK.
For the child or young person, there can be regular bouts of
pain, often causing prolonged periods of absence from school
or work and disability. Young people have to manage powerful The participants,
drug treatments that have side effects such as nausea, fatigue
their families and the
and weight gain. There are also significant emotional and
medical team have
psychological impacts for young people living with what is
observed significant
perceived as a condition more likely to affect their grandparents.
improvements in their
ability to cope with
According to research, one in five young people with juvenile
their condition, exhibit
arthritis suffer with depression in late adolescence2, and are up
to twice as likely to be unemployed as adults than the general confidence in themselves,
population3. For the family, there is the emotional challenge and optimism about the
of seeing their child or sibling in regular pain, as well as the future. I now see the
financial cost, with estimates suggesting that up to a tenth of a support from Arthritis
family’s income will often go on a child’s disability4.
Care as an integral
part of the care we
We have been working to improve how we help young people
provide for these
over the last year, with services ranging from partnerships with
young people.
clinical staff in hospitals, through to residential workshops,

family days, peer support and support for parents. This targeted
Madeleine Rooney
support reduces the risk of depression in young people and
Senior Consultant in Paediatric
improves their confidence in managing their condition.
and Adolescent Rheumatology,
Royal Belfast Hospital for
Sick Children
2 Nigrovic, Peter A., White, Patience H. (2006). Care of the adult with juvenile rheumatoid
arthritis. Arthritis and Rheumatism. 55: 2, 208-216.
3 Nigrovic, Peter A., White, Patience H. (2006). As above
4 C Cummins, M Connock, A Fry-Smith, A Burls (2002). A systematic review of
effectiveness and economic evaluation of new drug treatments for juvenile idiopathic
arthritis: etanercept. Health Technology Assessment 2002; Vol. 6: No. 17
8 arthritiscare.org.uk