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Applied Theatre in Paediatrics: Stories, Children and Synergies of Emotions PDF

141 Pages·2022·1.415 MB·English
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APPLIED THEATRE IN PAEDIATRICS This book explores applied theatre practice for children in environments of illness and cure and how it can powerfully normalise children’s hospitalisation experience. It is an essential tool for making meaning of children’s illness, putting it into a fictional context and developing better control of their clinical experiences. It can be central to raising the standards of care and quality of life during illness. Taken from the author’s research and participatory bedside theatre practice in hospitals before, during and after the COVID-19 pandemic, this book demonstrates new learning about aesthetics, ethics, emotions, stories, puppetry, digital arts and research methodologies about children’s health and wellbeing. It provides a selection of ten unique stories told by children inspired by applied theatre practice in paediatrics, cardiac, oncology, neurosurgery, burns units and complex and intensive care wards. Stories aid in understanding the language of children’s pain for a better assessment and management of pain by healthcare professionals through the arts. It analyses synergistic theatre performance in ‘stitched lands’ between challenging realities and safe fictionalities. This book enables artists to develop new ways of thinking and contributes to further improvements in the provision of education and reflective learning in the field. It also addresses the emotional labour of the artist in healthcare and makes recommendations for balanced training to prevent emotional exhaustion. Designed for artists, healthcare professionals, therapists, play specialists and teachers who work with children in healthcare, this text aims to help many people find creative ways of making a positive difference in sick children’s lives. It is a book for those who love and care for children. Persephone Sextou is a professor in applied theatre for health and wellbeing and the director of the Sidney De Haan Research Centre at Canterbury Christ Church University. She is a leading expert in participatory dramas for sick children in hospitals with 30 years of experience in academia around the world. She is the proud mother of two and the author of Theatre for Children in Hospital: The Gift of Compassion. Learning through Theatre: Dramatic Opportunities, Engagements and Challenges Series Editors John O’Toole and Kelly Freebody This series commissions in-depth studies of the use of theatre and drama for the widest range of specific purposes – beyond entertainment itself – that involve learn- ing. Contexts include formal educational settings such as schools and colleges, as well as social, communal, health, political, developing world, human services, war zones and commercial contexts. In the fields of applied theatre and drama educa- tion, three paradigms often define the purpose and the practice: • drama as art • drama as education • drama as social action and change. Books in the series tackle both the opportunities and the tensions among these paradigms: the developments, the challenges and the achievements in this still- growing field. Critical awareness and appraisal are a key feature, with some titles primarily grounded in theory and analysis, some more illustrative of good and bad practice. Authors include pioneers and established leaders as well as emerging practitioners and scholars. Teaching and Learning Through Dramaturgy: Education as an Artful Engagement Anna-Lena Østern Applied Theatre in Paediatrics Stories, Children and Synergies of Emotions Persephone Sextou For more information, please visit: https://www.routledge.com/Learning-Through- Theatre/book-series/LTT APPLIED THEATRE IN PAEDIATRICS Stories, Children and Synergies of Emotions Persephone Sextou Designed cover image: Persephone Sextou First published 2023 by Routledge 4 Park Square, Milton Park, Abingdon, Oxon OX14 4RN and by Routledge 605 Third Avenue, New York, NY 10158 Routledge is an imprint of the Taylor & Francis Group, an informa business © 2023 Persephone Sextou The right of Persephone Sextou to be identified as author of this work has been asserted in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988. All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library ISBN: 978-0-367-48325-8 (hbk) ISBN: 978-0-367-48326-5 (pbk) ISBN: 978-1-003-03934-1 (ebk) DOI: 10.4324/9781003039341 Typeset in Bembo by Apex CoVantage, LLC To my husband Michalis and my children Eleni and Nektarios, who make my world worth living. CONTENTS Preface ix Acknowledgements xiv 1 Hospitalised children’s stories in applied theatre 1 A synergistic and eudemonic phenomenon 1 Stories in-betweenness 6 Communicating pain: a process of attunement 9 Applied theatre or play therapy? 11 The ‘fictional bubble’: explosions and interruptions 14 The act of caring 15 The ‘marginal participant’ technique 16 2 Applied theatre and digital assets on the wards 21 The ‘Rocket-Arts’ project in hospitals 21 Pre-pandemic bedside performance 23 Post-pandemic digital solutions 25 Collection of stories 26 The impact of COVID-19 on ‘Rocket-Arts’ 29 3 Sick children’s stories: from patients to story-makers 31 Introduction to stories 31 Jane: ‘The piano is on fire’ 33 Sheila: ‘A moon made of cheese’ 35 Paul: ‘The naughty Wolf’ 37 Alex: ‘My grandfather’s wellies’ 39 viii Contents Sandy: ‘We need the Pancakes’ 42 Claire: ‘Silence’ 43 Karim: ‘No!’ 45 Lisa: ‘A robot who could not dance’ 46 Melissa: ‘The Planetary’ 47 Margaret: ‘A park for the animals’ 49 Stories of hospitalisation on a stitched land 52 4 Applied performance, puppetry and hospital tuition 60 The ‘Bird Island’ project 60 Lollie the rough collie and the magic kiss 61 Feeling worried in paediatrics 62 The dramatic frame 63 Participatory puppetry in hospital 64 Research 66 Complementing artistic knowing 68 Emma’s story 72 Katarina’s story 73 Azeeb’s story 74 5 Caring enough is never enough: training actors on emotional skills 78 Reflective poetry in paediatrics 78 Reflections 80 Walking the labyrinth on the ward: a metaphor 84 Caring for the artist: we can’t pour from an empty cup! 85 Emotional awareness: an act of caring 87 Realisations to take forward 90 Who is the excellent actor in healthcare? A portrait 92 6 The future: questions and recommendations 97 A flashback: my practice in a nutshell 97 Post-pandemic learning 101 Time for change 108 Actions by healthcare providers 110 Actions by local authorities and governments 111 Actions by artists 111 Appendix A Rocket-Arts’ or Simba, the therapy dog. The script 115 Appendix B ‘Lollie the rough collie and the magic kiss’. The story 120 Index 123 PREFACE This book is for those who love and care for children, their emotions and their stories as powerful experiences of joyful moments in illness. Every child’s story is entirely individual. Every child sees life through their filters. Every reading has its powers. Those who care for sick children tend to their imaginative stories. Can stories offer children control over their emotions and experience of illness? Can making stories help them play with the images and experiences they have and gain a clearer understanding of how life is, a better vision of who they are, how they feel, who they want to become, what path they want to walk and what steps to change they should take creatively? Children may tell stories to escape from reality, to attract our attention and ask for help. Stories make us human. We tell stories to make sense of what we experience in life and connect with others in good and bad times. We review and revise the past through our stories, understand and tolerate the present and visualise tomorrow. We use stories to travel in time. We tell stories to reach out for the imagined and the possible. Stories are ways of demystifying the mystery of life, revealing hidden truths and emotions. Stories of birth. Stories of love. Stories of pain. Stories of ill- ness. Stories of hope. Stories of death. Stories of escape. Stories of regret. Stories of forgiveness. Stories of growth. We share our emotions with people we know well, those we trust, people we have just met, and others we hope to meet and unite through our stories. I have been working with children in various roles since 1992, and I can con- firm from my experience that children are masters of imagination. They have a unique gift, a capacity to pull threads from their worlds and use them in stories that can create connections between them and their characters, between their own experiences and the experiences of others. In addition, they do not even care about how adults will perceive their stories. Most children’s stories are genuine, original and spontaneous. They come from an authentic place, and thus, they may sound

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