Altruism reconsidered medical law and ethics Series Editor sheila mclean, director of the institute of law and ethics in medicine, school of law, university of Glasgow the 21st century seems likely to witness some of the most major developments in medicine and healthcare ever seen. At the same time, the debate about the extent to which science and/or medicine should lead the moral agenda continues, as do questions about the appropriate role for law. this series brings together some of the best contemporary academic commentators to tackle these dilemmas in a challenging, informed and inquiring manner. the scope of the series is purposely wide, including contributions from a variety of disciplines such as law, philosophy and social sciences. Other titles in the series the child As Vulnerable Patient Protection and empowerment Lynn Hagger isBn 978-0-7546-7252-4 disclosure dilemmas ethics of Genetic Prognosis after the ‘right to Know/not to Know’ debate Edited by Christoph Rehmann-Sutter and Hansjakob Müller isBn 978-0-7546-7451-1 critical interventions in the ethics of Healthcare challenging the Principle of Autonomy in Bioethics Edited by Stuart J. Murray and Dave Holmes isBn 978-0-7546-7396-5 law, mind and Brain Edited by Michael Freeman and Oliver R. Goodenough isBn 978-0-7546-7013-1 speaking for the dead the Human Body in Biology and medicine D. Gareth Jones and Maja I. Whitaker isBn 978-0-7546-7452-8 Altruism reconsidered exploring new Approaches to Property in Human tissue Edited by micHAel steinmAnn Stevens Institute of Technology, USA Peter sÝKorA University of Saints Cyril and Methodius, Slovakia urBAn WiesinG Eberhard Karls Universität, Tübingen, Germany © michael steinmann, Peter sýkora, and urban Wiesing 2009 All rights reserved. no part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without the prior permission of the publisher. michael steinmann, Peter sýkora, and urban Wiesing have asserted their right under the Copyright, Designs and Patents Act, 1988, to be identified as the editors of this work. Published by Ashgate Publishing limited Ashgate Publishing company Wey court east suite 420 union road 101 cherry street Farnham Burlington surrey, Gu9 7Pt Vt 05401-4405 england usA www.ashgate.com British Library Cataloguing in Publication Data Altruism reconsidered : exploring new approaches to property in human tissue. -- (medical law and ethics) 1. Human body--law and legislation--europe. i. series ii. steinmann, michael. iii. sýkora, Peter. iV. Wiesing, urban. 344.4'04194-dc22 Library of Congress Cataloging-in-Publication Data steinmann, michael, 1964- Altruism reconsidered : exploring new approaches to property in human tissue / by michael steinmann, Peter sýkora, and urban Wiesing. p. cm. -- (medical law and ethics) includes bibliographical references and index. 1. Preservation of organs, tissues, etc.--law and legislation. 2. Preservation of organs, tissues, etc.--moral and ethical aspects. 3. right of property. 4. donation of organs, tissues, etc.--law and legislation. 5. transplantation of organs, tissues, etc.--law and legislation. 6. medicine--research. i. sýkora, Peter, 1956- ii. Wiesing, urban. iii. title. K3611.t7.s74 2009 174.2'97954--dc22 2009015492 isBn 9780754672708 (hbk) isBn 9780754689362 (ebk.V) contents List of Figures and Tables ix List of Contributors xi Acknowledgments xvii 1 introduction 1 Michael Steinmann PART I RECIPRoCITy AND PARTICIPATIoN: ovERCoMINg THE MoDELS of ‘gIfT’ AND ‘ALTRUISM’ 2 Altruism in medical donations reconsidered: the reciprocity Approach 13 Peter Sýkora 3 notes on Policy, language and Human tissue 51 Richard Tutton PART II DoNATIoN IN THE LIgHT of HUMAN EMBoDIMENT 4 Why the Body Matters: the Symbolic Significance of Human Tissue 65 Alastair V. Campbell 5 duties towards our Bodies 71 Michael Steinmann PART III ToWARDS A RICHER UNDERSTANDINg of PRoPERTy IN ETHICS AND LAW 6 Property in Human tissue: triangulating the issue 93 Roger Brownsword 7 Property rights in the Body – A Philosophical Approach 105 Barbro Fröding vi Altruism Reconsidered 8 Reflections on Entitlements in the Human Body from an equity Perspective 113 Nils Hoppe PART Iv MoDELS of govERNANCE: PITfALLS AND PoSSIBILITIES 9 using tissue and material from the Human Body for Biomedical research: Proposals for a normative model 133 Christian Lenk and Nils Hoppe 10 Preventing Conflicts of Interests in the Field of Human Biological materials: the ‘contractual model’ as an Avant-garde 143 Christine Noiville 11 the model of trust 149 Caroline Mullen 12 moore’s law and the taxman: some theses on the regulation of Property in Human tissue 161 Jasper A. Bovenberg 13 An investigation of the conception, management and regulation of tangible and intangible Property in Human tissue: the Propeur Project 169 Caroline Mullen and Heather Widdows PART v THE PERSISTINg CHALLENgES of REgULATIoN 14 Personal rights over an individual’s Biological sample stored for research 183 Aitziber Emaldi-Cirión 15 Human Biological materials among civil, trade and Health Law: Ethical, Anthropological and Legal Implications of Conflicts of law system 201 Catherine Labrusse-Riou 16 Indirect Commodification of Ova Donation for Assisted reproduction and for Human cloning research: Proposals for supranational regulation 209 Ingrid Schneider Contents vii 17 Accessing Genetic information: Anomalies Arising from the regulation of Genetic material and Genetic information in the uK 243 Alison Hall 18 Biobanks for research: the German national ethics council’s opinion 281 Jochen Taupitz 19 european regulations on Human tissue and cells transplantation 297 Ján Koller Index 309 This page has been left blank intentionally list of Figures and tables figure 8.1 the layers model 121 Tables 16.1 egg donation – regulation in europe and international practice 211 16.2 typology of oocyte donation 214 16.3 ‘the race is on…’: research cloning (scnt) projects in 2006/2007 219
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