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Adolescents and Adults with Autism Spectrum Disorders PDF

346 Pages·2014·2.44 MB·English
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Fred R. Volkmar Brian Reichow James C. McPartland Editors Adolescents and Adults with Autism Spectrum Disorders Foreword by Sir Michael Rutter Adolescents and Adults with Autism Spectrum Disorders Fred R. Volkmar (cid:129) Brian Reichow James C. McPartland Editors Adolescents and Adults with Autism Spectrum Disorders Foreword by Sir Michael Rutter Editors Fred R. Volkmar Brian Reichow Child Study Center, Yale University AJ Pappanikou Center for Excellence New Haven , CT , USA in Developmental Disabilities University of Connecticut Health Center James C. McPartland Farmington , CT , USA Child Study Center, Yale University New Haven , CT , USA ISBN 978-1-4939-0505-8 ISBN 978-1-4939-0506-5 (eBook) DOI 10.1007/978-1-4939-0506-5 Springer New York Heidelberg Dordrecht London Library of Congress Control Number: 2014935876 © Springer Science+Business Media New York 2014 T his work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifi cally the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfi lms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. Exempted from this legal reservation are brief excerpts in connection with reviews or scholarly analysis or material supplied specifi cally for the purpose of being entered and executed on a computer system, for exclusive use by the purchaser of the work. Duplication of this publication or parts thereof is permitted only under the provisions of the Copyright Law of the Publisher’s location, in its current version, and permission for use must always be obtained from Springer. Permissions for use may be obtained through RightsLink at the Copyright Clearance Center. Violations are liable to prosecution under the respective Copyright Law. T he use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specifi c statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. While the advice and information in this book are believed to be true and accurate at the date of publication, neither the authors nor the editors nor the publisher can accept any legal responsibility for any errors or omissions that may be made. The publisher makes no warranty, express or implied, with respect to the material contained herein. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com) Dedicated to the memory of Eric Schopler, Ph.D. And in honor of Gary Mesibov, Ph.D., pioneers in the fi eld. Foreword As the introduction to this new volume well brings out, despite the enormous increase in research into autism spectrum disorders (ASD) there has been a paucity of good systematic studies into ASD in adolescents and adults. Nevertheless, this book does a good job in bringing together what has been found out since the fi rst volume some three decades ago. It is now evident that ASD is diagnosed much more often than used to be the case, although uncertainty remains on whether the rise in diagnosis involves a true rise in incidence rather than just better ascertainment and a broadening of the diagnostic concept. Several studies have shown an increased mortality compared with the general population but whether this is a function of autism as such or rather associated intellectual disability and/or epilepsy is unclear. Follow-up studies have shown a remarkable heterogeneity in outcome, although possibly the outcome may be somewhat better than it used to be. In many regions of the world, the transition from childhood to adulthood has been accompanied by an increased diffi culty in obtaining the care needed. There is knowledge on what is required but different services all too often argue over whose budget is used to pro- vide the resources. If he were alive today, Eric Schopler would be gratifi ed by what has been achieved (well summarized in this volume), but with an awareness of the remaining gaps, he would be fi ghting for more to be done. London, UK Sir Michael Rutter vii Contents 1 Autism Spectrum Disorder in Adolescents and Adults: An Introduction .................................................................. 1 Fred R. Volkmar, Brian Reichow, and James C. McPartland 2 Families of Adults with Autism Spectrum Disorders ........................... 15 Mary E. Van Bourgondien, Tamara Dawkins, and Lee Marcus 3 Transition from High School to Adulthood for Adolescents and Young Adults with Autism Spectrum Disorders ........................... 41 Carol Schall, Paul Wehman, and Staci Carr 4 Social Skills Training for Adolescents and Adults with Autism Spectrum Disorder ......................................... 61 Elizabeth A. Laugeson and Ruth Ellingsen 5 Romantic Relationships, Sexuality, and Autism Spectrum Disorders ................................................................................ 87 Lynn Kern Koegel, Whitney J. Detar, Amanda Fox, and Robert L. Koegel 6 Employment and Related Services for Adults with Autism Spectrum Disorders ........................................................... 105 Peter F. Gerhardt, Frank Cicero, and Erik Mayville 7 Innovative Programming to Support College Students with Autism Spectrum Disorders ........................................................... 121 Jane Thierfeld Brown, Lorraine E. Wolf, and Sarah Kroesser 8 Adaptive Behavior, Life Skills, and Leisure Skills Training for Adolescents and Adults with Autism Spectrum Disorders ............ 131 Nicole C. Turygin and Johnny L. Matson ix

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