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307 Pages·2010·3.75 MB·English
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A JOURNEY INTO THE HIDDEN LIVES OF ELECTRONIC MEDICAL RECORDS (EMRS): ACTION RESEARCH IN THE MAKING by Nina Boulus B.Sc., Norwegian University of Technology and Science, 2001 M.Sc, University of Oslo, 2004 THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY In the School of Communication © Nina Boulus, 2010 SIMON FRASER UNIVERSITY Spring 2010 All rights reserved. However, in accordance with the Copyright Act of Canada, this work may not be reproduced, without authorization, under the conditions for Fair Dealing. Therefore, limited production of this work for the purposes of private study, research, criticism, review and news reporting is likely to be in accordance with the law, particularly if cited appropriately. APPROVAL Name: Nina Boulus Degre: PhD Title of Thesis: A Journey into the Hidden Lives of Electronic Medical Records (EMRs): Action Research in the Making Examining Committee: Chair: Bary Truax _ Dr. Ellen Balka Senior Supervisor Professor, School of Communication _ Dr. Gary McCarron Supervisor Associate Professor, School of Communication _ Dr. Richard Smith Supervisor Professor, School of Communication _ Dr. Sandra Jarvis-Selinger External Examiner Assistant Professor, Faculty of Medicine University of British Columbia _ Dr. Olga Volkoff Internal Examiner Assistant Professor, Business, SFU Date Defended/Approved: March 1, 2010 ii Declaration of Partial Copyright Licence The author, whose copyright is declared on the title page of this work, has granted to Simon Fraser University the right to lend this thesis, project or extended essay to users of the Simon Fraser University Library, and to make partial or single copies only for such users or in response to a request from the library of any other university, or other educational institution, on its own behalf or for one of its users. The author has further granted permission to Simon Fraser University to keep or make a digital copy for use in its circulating collection (currently available to the public at the “Institutional Repository” link of the SFU Library website <www.lib.sfu.ca> at: <http://ir.lib.sfu.ca/handle/1892/112>) and, without changing the content, to translate the thesis/project or extended essays, if technically possible, to any medium or format for the purpose of preservation of the digital work. The author has further agreed that permission for multiple copying of this work for scholarly purposes may be granted by either the author or the Dean of Graduate Studies. It is understood that copying or publication of this work for financial gain shall not be allowed without the author’s written permission. Permission for public performance, or limited permission for private scholarly use, of any multimedia materials forming part of this work, may have been granted by the author. This information may be found on the separately catalogued multimedia material and in the signed Partial Copyright Licence. While licensing SFU to permit the above uses, the author retains copyright in the thesis, project or extended essays, including the right to change the work for subsequent purposes, including editing and publishing the work in whole or in part, and licensing other parties, as the author may desire. The original Partial Copyright Licence attesting to these terms, and signed by this author, may be found in the original bound copy of this work, retained in the Simon Fraser University Archive. Simon Fraser University Library Burnaby, BC, Canada Last revision: Spring 09 STATEMENT OF ETHICS APPROVAL The author, whose name appears on the title page of this work, has obtained, for the research described in this work, either: (a) Human research ethics approval from the Simon Fraser University Office of Research Ethics, or (b) Advance approval of the animal care protocol from the University Animal Care Committee of Simon Fraser Univers ity; or has conducted the researc h (c) as a co-investigato,r collaboratoro r research assistan itn a research project approved in advance, or (d) as a member of a course approved in advance for minimal risk human research, by the Office of Research Ethi cs. A copy of the approval letter has been filed at the Theses Office of the University Library at the time of submission of this thesisp roorj ect. The original application for approval and letter of approval are filed with the relevant offices. Inquiries may be directed to those authorit ies. Simon Fraser University Libra ry Simon Fraser Universit y Burnaby, BC, Canada Last update: Spring 2010 ABSTRACT Drawing upon a three and a half year long research project, this dissertation examines the adaptation process of an electronic medical record (EMR) in a primary healthcare setting, with emphasis on methodological reflections on doing action research with a community partner. This dissertation thus comprises two components: the first focuses on the implementations of EMRs, and the second focuses on action research as a method used for studying the EMRs, thus giving a glimpse of the research process. Drawing upon concepts from the fields of Computer-Supported Cooperative Work (CSCW) and Information Systems (IS), I analyze how health care practitioners adapt technology to their situated work practices. Investigating the factors promoting the adaptation process showed that reflective activities were essential for constructing emergent work practices. I therefore provide a conceptualization of the essential aspects of these reflective activities. I analyze how the technology transforms the medical practice, and identify two types of sociotechnical changes and their implications. Introducing insights from Actor-Network Theory (ANT), I argue that the EMR is more than just a tool that simply enables/constrains the medical practice. Rather, it is an active actor that has come to play an increasingly central role in the delivery and organization of care, and it is gradually transforming the medical profession. Following a self-reflective and critical epistemological stance, I shed light on methodological complexities faced when conducting action research. I investigate the norms that are enacted within IS action research, and I argue that these are built upon a rigid and standardized platform, similar to the one that traditional action research was originally opposed to. I also argue that these norms fail to critically address ways of discussing and managing empirical uncertainties and dilemmas. Drawing upon reflexive research methodologies, first-person action research and confessionals, I illustrate how empirical uncertainties can be transformed into fruitful practical interventions and utilized as knowledge providers. Finally, I propose conceptualizing action research as an actor-network with different sociomaterial connections which configure and produce particular roles in diverse settings. A network model enables us to see how future roles and interventions can be interpreted through past connections. Keywords: Electronic medical record; hospital information systems; medical informatics; computer-supported cooperative work; science and technology studies; technology-in-use practices; reflection-on-practice; technology adaptation; sociotechnical; actor-network theory; reflexive research methodologies; action research; confessionals iii DEDICATION In memory of my father, who always wanted his children to achieve the education he did not get for himself iv ACKNOWLEDGEMENTS It goes without saying that this dissertation was made possible with the help of people who provided me with an intellectually nourishing environment and to whom I must remain forever indebted. I am deeply grateful to my supervisory committee for supporting me during my doctoral education. I wish to thank Ellen Balka, for leaving me with memorable experiences. A special thanks to Gary McCarron, for his endless support, both as a committee member but also as a graduate chair. You served as a true mentor, showing continued interest in my work, providing me with comprehensive, critical and insightful comments that had impact on my thinking. A special thanks to Richard Smith, for his endless generosity, enthusiasm, perseverance and good humor. You have been a wonderful mentor, someone who would always go the extra mile for his students. This dissertation would have not been possible without the invaluable assistance I received from a range of colleagues who also became dear friends. I had the good fortune to work with Pernille Bjørn Rasmussen. The endless conversations, fruitful collaborations and strong friendship that have developed throughout these years are invaluable. I could have never written this thesis without your continued interest and enthusiasm, as well as your committed and careful reading of earlier drafts of the entire dissertation. I am deeply grateful for Kjetil Rødje, who has provided me with intellectual stimulation and critical comments throughout my entire doctoral studies. Your insights were indispensable in pushing the action research component of the dissertation beyond its conceptual infancy and onto a theoretical analytical level. Special thanks goes to Miria Grisot, for much appreciated support, encouragement and guidance during her brief, yet rewarding, stay at SFU. Without her critical and sharp insights, I fear the action research component of the dissertation would have never materialized. Thanks to Guenther Krueger, for the many interesting debates about qualitative research, for being always available for reading and commenting earlier papers, and for the endless personal support you have given me throughout my entire doctoral studies. I am also indebted to Casper Bruun Jensen, for the many intense and enjoyable discussions we had during the first year of my doctoral studies. Your critical work will always remain a great source of inspiration. Thank you also for pushing me into writing about fieldwork troubles; a topic I came to develop great passion towards. I also wish to thank Marianne Tolar for her careful reading and help with parts of the dissertation during the final period v of writing, as well as Tracy Lee, whose resilience, kindness, encouragement and feedback have been invaluable. I am grateful to Nicki Kahnamoi, with whom I had the great pleasure to work at the start of the project, and Lindsay Lynch for being my thesis buddy and for helping me with editing. Thanks also to the staff and faculty of the School of Communication; in particular, Denise Vanderwolf, Lucie Menkveld, Monique Cloutier and Amy Soo, for making the bureaucratic aspects of academic work manageable. Special thanks go to Jan Marontate for helping smooth out the path as I went through the final stages of my PhD. I had the pleasure to meet a range of people whose outstanding work have motivated and inspired me throughout my research endeavor. This includes Sisse Finken and Ingunn Moser, as well as Els Goorman and Sally Wyatt who kindly read early drafts of papers I have written. I am indebted to my mentors from the University of Oslo, Margunn Aanestad and Judith Gregory. Their continuous trust and belief in me are part of the reasons for the fact that I have thus far chosen an academic career. My appreciation belongs to the staff of the community partner’s clinic whose generosity and openness made the fieldwork possible. I am also grateful to the Social Sciences and Humanities Research Council of Canada, for their support of the ACTION for Health Research Program, Grant #512-2003-1017, funded through the Initiative for a New Economy Collaborative Research Initiative. I am also indebted to friends and family for their never ending support. This includes Servane Mason, for the beers and the many good laughs we had. Kjetil Rødje deserves special thanks for being so supportive and patient with me, and for keeping things in perspective. You remain the true engine that kept me going and sustained my efforts throughout my entire doctoral work. Special thanks goes to my mother, May Boulus, my brother and sister, Toofik and Georgina Boulus, for their love and support, for always believing in me and encouraging me to follow my interests. You are my true heroes. Vancouver, March 2010 vi TABLE OF CONTENTS Approval .............................................................................................................................ii Abstract ............................................................................................................................ iii Dedication......................................................................................................................... iv Acknowledgements ........................................................................................................... v Table of Contents ............................................................................................................vii List of Figures................................................................................................................... xi List of Tables ...................................................................................................................xii Glossary of Acronyms.................................................................................................... xiii Chapter 1: Introduction......................................................................................................1 1.1 Setting the Stage ...............................................................................................4 1.1.1 Field Site.......................................................................................................5 1.1.2 EMRs: Media and Policy Discourse ..............................................................5 1.1.3 The Turn to Action: A Contemporary Research Trend ...............................13 1.2 Motivation for the Study.................................................................................16 1.3 Research Questions ........................................................................................18 1.4 Relevance of the Study and Expected Contributions.......................................20 1.4.1 Healthcare IT and EMRs ............................................................................20 1.4.2 Methodological Reflections on Action Research .........................................23 1.5 An Overview of the Dissertation Structure .....................................................26 Chapter 2: Literature and Related Research ..................................................................28 2.1 Introduction ...................................................................................................28 2.2 Theoretical Orientation...................................................................................28 2.3 Healthcare IT and Medical Practice ................................................................29 2.3.1 Brief History of EMRs................................................................................30 vii 2.3.2 EMR Literature...........................................................................................31 2.4 Action Research..............................................................................................39 2.4.1 Traditional Action Research........................................................................40 2.4.2 IS Action Research .....................................................................................51 2.4.3 STS Action-Oriented Research ...................................................................56 2.5 Summary ........................................................................................................61 Chapter 3: Ontological, Epistemological and Methodological Assumptions .............64 3.1 Theoretical Platform...................................................................................64 3.2 Constructivist Paradigm..................................................................................64 3.2.1 Constructivist Ontology and Epistemology.................................................67 3.2.2 Constructivist Methodologies .....................................................................69 3.3 Science and Technology Studies......................................................................71 3.3.1 Actor-Network Theory: Core Analytical Concepts and Insights..................73 3.4 Empirical Case and Methods for Studying the EMR.......................................84 3.4.1 Research Project and Field Setting ..............................................................85 3.4.2 Research Methodology and Design .............................................................88 3.4.3 Data Collection Techniques and Fieldwork.................................................90 3.4.4 Coding and Data Analysis ...........................................................................98 3.5 Studying Action Research- The Reflexive Turn.............................................102 3.5.1 Second-Order Inquiry and Action Research ‘in the Making’......................102 3.5.2 Reflexivity and First-Person Action Research............................................103 3.5.3 Reflective Thinking- Reflexive Methodology.............................................104 3.5.4 Confessionals: Reflexive Voice and Writing Style......................................107 3.6 Summary ......................................................................................................108 Chapter 4: Electronic Medical Records........................................................................110 4.1 Introduction .................................................................................................110 4.2 Setting the Stage ...........................................................................................112 4.2.1 Unpacking EMRs: Visions and Technologies............................................112 4.2.2 ‘The Jewel in our Crown:’ Pre-EMR Implementation ...............................116 4.3 The Birth of the EMR ..................................................................................120 4.3.1 Beyond Technical Infrastructure ...............................................................121 4.3.2 Identifying and Analysing Technology Practices .......................................124 4.3.3 Summary and Implications for EMR Adaptation ......................................129 4.4 Factors Supporting the Adaptation Process ..................................................132 viii

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