32nd International Conference of Alzheimer's Disease International, 26-29 April 2017, Kyoto, Japan

659 Pages·2017·5.56 MB·English

by  Alzheimer's Disease International

Abstract Book
Together towards a new era
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To search this Abstract Booklet ............................................................................................................ 2
Plenary Abstracts ................................................................................................................................. 4
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Workshops ......................................................................................................................................... 21 t
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Oral Abstracts .................................................................................................................................... 26 n
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Poster Abstracts ............................................................................................................................... 180
Author’s Index .................................................................................................................................. 640
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Plenary Abstracts
Session: Global Aspect of Dementia
PL01
Date: Thursday 27th April 2017
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tr Overview of Dementia Movement from Early 1980’s–2017
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a Marc Wortmann
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Pl Alzheimer’s disease International, London
Abstract:
What are the lessons that we can learn from over 30 years Alzheimer’s and dementia movement? It is
important to look at those when we want to move forward towards a new era, because a lot has been achieved
but not yet enough.
In 1984 representatives of four associations: Australia, Canada, UK and USA came together in Washington
DC with individuals from Belgium, France and Germany as well and created ADI. There was little knowledge
about Alzheimer’s and dementia by that time. The associations all chose to have Alzheimer’s in their name to
make clear that this is a disease and not normal ageing. Still many people around the world believe dementia is
normal part of ageing, including many doctors. But a lot has changed since those early days.
I want to lead you through these changes and present the lessons learnt in advocacy: the five main conditions
to create a strong dementia movement: you need the facts, a face and a champion and you have to consider
the language that you use and finally, the importance of strong Alzheimer associations. Being conscious of
these conditions, implicit or explicitly has brought us where we are now: close to the situation that dementia is
becoming one of the most serious priorities of health and social care of the 21st century.
The other major development has been the involvement of people with dementia, which has changed our
language from talking about a devastating disease only to a more nuanced view on enabling people to live with
dementia and continue to be part of society.
How we can go from here towards a new era will be the key question of this conference? Some thoughts will
be shared in this presentation.
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Plenary Abstracts
Session: Global Aspect of Dementia
PL02
Date: Thursday 27th April 2017
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Dementia Movement in Japan from 1980–2017 st
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Kunio Takami n
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Alzheimer’s Association Japan
Abstract:
1980年初頭から今日まで　
～わが国における道のり～
公益社団法人　認知症の人と家族の会
代表理事　髙　見　国　生
アルツハイマー博士が初めてアルツハイマー病を報告してから70数年が経過した1980年‥。まだ認知症への誤
解と偏見があふれていた時代に、介護に苦闘する家族たちは立ち上がった。「家族の会」の結成である。
　医療からも介護からも見放されていたが、家族は認知症になった身内を見放すことは出来なかった。繋が
り、励ましあい助けあって介護への勇気を湧かせ、少しでも良い介護をしたいと望んだ。
　体験を語り社会の関心を高め、介護の社会化を求めた。良心的な医師や専門職や市民が支援の手を差し伸べ
てくれた。家族の輪は広がり、支援者の輪も広がった。
　高齢化社会の到来とともに、行政も認知症問題を避けて通れなくなった。次第に社会の関心も高まり、徐々
に施策も始まってゆき、結成から20年目にして、介護の社会化の表れである介護保険制度が誕生した。
　日本の認知症の歴史は、介護する家族が声をあげたところから始まり、その苦労を理解する専門職たちの実
践が牽引してきたと言うことができる。そして、何も出来ない、何もわからないと思われていた認知症の本人
が語り始めたことによって、認知症への理解は飛躍的に進んだ。
　介護に苦労している者、現場で認知症の人に接している者、そして認知症の本人が声をあげることこそが、
社会の理解と取り組みを進める力であった。そのような日本の認知症への取り組みの歴史を語りたい。
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Plenary Abstracts
Session: Global Aspect of Dementia
PL03
Date: Thursday 27th April 2017
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tr What kinds of knowledge and wisdom can we propose for next generations?
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a Prof. Kiyoshi Kurokawa
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Pl National Graduate Institute for Policy Studies, Japan
Abstract:
Remarkable progress of science and technology has made our life expectancy almost double in the last
century, from 40 to 80 years. We were looking forward to our extra years toward the end of our life. But the
reality is complicated by several new challenges.
In many OECD countries, an increased fraction of aged population has been understandably resist to any
change in national policy matters, e.g., prolonged work years, postponing to start pension payment, etc.
On the other hands, growing economies need to prepare for soon-to-come aging society while prioritizing
investments in economy, education, healthcare and social infrastructure.
In our extra years toward the end of life, the reality is not only in economy, family and community, but also
the fact that one of three of us will get Dementia, Alzheimer’s disease being the major underlying cause. The
social cost for aged population is soaring in OECD countries, care of dementia has become substantial, a few
% of GDP. Further, 40-60% of this coat is categorically invisible cost, primarily provided by younger women
caregivers in family and in community; this shows depriving opportunities for women to study, to work earning
income and to build their own careers. This invisible cost for dementia is much higher in Low and Middle
Income Countries, and accounting almost over 80%. Further, the fact that women are more likely to live longer
and twice likely to get Dementia than men at comparable ages, poses yet another serious challenge in aging
society. Japan, most aged country of the world, embraces 60K centenarians, ~85% of which being women.
Community-based social cohesion in the era of aging is another political and social challenge. Progress of
science, technology and engineering in life science and computing/digital technology are not only critical
to understand and modify aging process, but also effective to support persons with dementia and their
caregivers.
Everyone now ages and lives longer life. Then, what kinds of knowledge and wisdom can we propose for
our current and next generations? In this session, I will discuss those issues on our major common agenda,
Dementia.
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Plenary Abstracts
Session: Equity and Access in Dementia Care
PL04
Date: Thursday 27th April 2017
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Dignity in Care in the Heart, Mind and Actions : DIGNITY AND DEMENTIA - Zero tolerance to all form tr
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of abuse : Improving the journey of consumers and their care givers in the acute and community care b
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Dr. Faizal Ibrahim Pl
SA Health - The Queen Elizabeth Hospital, Central Adelaide Local Health Network (CALHN) and Port Lincoln
Geriatric Services (CHSA)
Abstract:
The presentation will explain the evolution, successes and lessons learnt by Dignity in Care Australia Action
Group in championing Dignity in Care in Australia, with the aims of improving the journey of consumers
including their care givers in the acute and community care setting in context of dignified dementia care. The
purpose of Dignity in Care Australia is to work collaboratively with consumers, carer givers, service providers,
policy makers and advocacy bodies to promote the use of the 10 principles of Dignity in Care as the basic
standard of care that services need to provide and consumers and care givers should know to expect. And
also to establish baseline evidence with regards to the Dignity in Care principles.
The Dignity in Care campaign was first launched in Australia in 2011 at The Queen Elizabeth Hospital, Adelaide
with Ms Maggie Beer as the Patron, with aims to change the culture of Australian healthcare services by
reinforcing the importance of treating patients with Dignity and Respect. Dignity in Care encourages the use of
clinical governance strategies, and continued staff and consumers education to promote 10 Dignity Principles.
In striving for excellence of care, the Dignity in Care works in synergy with varied programs in the all care
settings. By enlisting Dignity Champions from all walks of life, a Dignity in Care message is spread throughout
the hospitals, community and aged care settings.
Dignity is concerned with how people feel, think and behave in relation to the value of themselves and others.
To treat someone with dignity is to treat them in a way that is respectful of them and as valued individuals.
In a care situation, dignity may be promoted or lessened by physical environment, organisation cultures,
attitudes and behaviour of the staff or others. When dignity is present, people feel in control, valued, confident,
comfortable and able to make decisions for themselves.
The 10 Dignity in Care Principles are as follows :
1. Zero tolerance of all forms of abuse
2. Support people with the same respect you would want for yourself or a member of your family
3. Treat each person as an individual by offering a personalised service
4. Enable people to maintain the maximum possibly level of independence, choice, and control
5. Listen and support people to express their needs and wants
6. Respect people’s privacy
7. Ensure people feel able to complain without fear of retribution
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Plenary Abstracts
8. Engage with family members and carers as care partners
9. Assist people to maintain confidence and a positive self esteem
10. Act to alleviate people’s loneliness and isolation.
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t This pilot South Australian initiative became national in early 2015 under the name Dignity in Care Australia,
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a now with more than a few thousand enthusiastic champions. Dignity in Care Australia is partnered with The
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and modelled on the UK program. Dignity in Care focuses on building partnerships and encourages the use
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y of clinical governance strategies and continued staff education to promote 10 Dignity Principles. Dignity in
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a Care Australia endeavours to spread best practice and equip people to take action, raise awareness of the “10
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e Principles” Reward and recognise those that make a difference.
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In striving for excellence of care, Dignity in Care works in synergy with the various initiatives in the acute,
sub–acute, aged care, government and non-government organisations. The campaign focuses on awareness,
education and provision of dignified excellence of care in dealing with themes. For example, Caring for
Cognitive Impairment, End of Life Care and Cultural Diversity. The campaigns successes in various care
settings are due to the Champions enthusiasm, and as a result of staff valuing the strengths of working in close
partnership with consumers and their carer givers.
To action the Dignity in Care principles, Dignity in Care Australia with its partners have hosted many successful
events since 2011 which include the annual National Dignity in Care Conference, South Australia Mindful of
Dementia Day and since 2015, the Dignity in Care National Achievement Awards.
To learn more about the what it means to become a Dignity champion and how to join the campaign please
visit the URL: http://www.dignityincare.com.au/
and/or via facebook: https://www.facebook.com/groups/346284815495854/
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Plenary Abstracts
Session: Equity and Access in Dementia Care
PL05
Date: Thursday 27th April 2017
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Human rights for people with dementia A

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Kate Swaffer Pl
Dementia Alliance International, Australia
Abstract:
According to The Organisation for Economic Cooperation and Development’s published report of the world’s
38 richest countries, “Dementia receives the worst care in the developed world.” With this in mind, Kate
Swaffer will outline many steps people with dementia have taken to ensure human rights based approaches
to dementia. In March 2015, DAI made three demands at the WHO First Ministerial Conference on Dementia.
We claimed we have a human right to a more ethical pathway of care, including rehabilitation, we asked to
be treated with the same human rights as everyone else, under the Disability Discrimination Acts and UN
Convention on the Rights of Persons with Disabilities, and that research does not only focus on a cure, but
on care for the more than 47.5 million people currently diagnosed with dementia. Since that time, we have
collaborated with ADI and this presentation will outline the progress DAI and others are making on taking the
rhetoric of a human rights based approach to dementia, and turning it into a reality.
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Plenary Abstracts
Session: Equity and Access in Dementia Care
PL06
Date: Thursday 27th April 2017
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Building partnerships and collaboration in dementia care has proven to be a workable way forward to achieve
improved care and quality of life for people living with dementia and their families and carers. In Singapore
eldercare agencies have formed dynamic regional networks for the care of elderly and more services have
included the care of people living with dementia into their existing models of care. As our dementia services
evolve, ensuring equity and access is a priority and organisations have collaborated to provide dementia care
for special groups of people living with dementia such as younger onset dementia and those who require
rehabilitation and palliative care.
The World Alzheimer Report 2015 estimated that there were 46.8 million people worldwide who were living with
dementia in 2015. This number is expected to reach 131.5 million in 2050. Faced with this dramatic increase,
the need for governments to develop comprehensive and integrated care services that cater to the needs of
people living with dementia, their families and their carers is urgent. Ensuring that dementia care is accessible
and equitable is a tremendous challenge as resources are often limited, services inadequate-both in capacity
and quality, and care systems which are stretched to their capacity are fragmented and uncoordinated. The
challenge to integrate health and social care is imperative.
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