Running head: LIVED EXPERIENCES AND CHILD LOSS THE LIVED EXPERIENCES OF ROMANTIC RELATIONSHIPS FOLLOWING CHILD LOSS by ERIN ELIZABETH BUHR A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF ARTS in THE FACULTY OF GRADUATE STUDIES GRADUATE COUNSELLING PSYCHOLOGY PROGRAM We accept this thesis as conforming to the required standard .......................................................................................... Derrick Klaassen, PhD, Thesis Supervisor .......................................................................................... Briana Nelson Goff, PhD, Second Reader ............................................................................................. Paige Toller, PhD, External Examiner TRINITY WESTERN UNIVERSITY May 13, 2014 © Erin Buhr LIVED EXPERIENCES AND CHILD LOSS ii ABSTRACT This study examined the impact a child’s death had on bereaved parent’s relationships with their significant other utilizing phenomenology. The research question was “what was the experience of the relationship with your significant other following the loss of your child?” Semi-structured interviews were conducted with eight participants. Themes included: The relationship changed after the child’s death; Communication was important to the relationship dynamic; Grieving differences existed and impacted the relationship; Specific behaviours were identified that had the potential to facilitate or harm; Individual grief impacted the relationship; Couples’ utilized additional emotional support outside the relationship; Sex decreased. The themes were discussed within the context of the larger bereavement literature which included grieving differences, continuing bonds, and trauma models for couples. Themes were also discussed with regard for how to provide informed counselling interventions for bereaved parents, such as addressing issues that may arise because of grieving differences. Key words: Loss and grief; Bereaved parents; Relationships; Support following loss; Counselling interventions. LIVED EXPERIENCES AND CHILD LOSS iii TABLE OF CONTENTS ABSTRACT .................................................................................................................................... ii LIST OF TABLES ........................................................................................................................ vii ACKNOWLEDGEMENTS ......................................................................................................... viii DEDICATION ............................................................................................................................... ix CHAPTER 1: INTRODUCTION ................................................................................................. 10 Child Loss and Effects on Parents............................................................................................. 11 Loss and Romantic Relationship Dynamics.............................................................................. 14 Cause of Death .......................................................................................................................... 14 Common Terms ......................................................................................................................... 15 Bereavement. ......................................................................................................................... 15 Grief ....................................................................................................................................... 15 Mourning ............................................................................................................................... 16 Intimacy ................................................................................................................................. 17 Limitations of the Research....................................................................................................... 18 Current Study ............................................................................................................................ 19 CHAPTER TWO: LITERATURE REVIEW ............................................................................... 22 Theoretical Approaches to Grief ............................................................................................... 22 Psychodynamic ...................................................................................................................... 22 Attachment theory ................................................................................................................. 23 Continuing bonds ................................................................................................................... 25 Dual process model ............................................................................................................... 26 Cognitive stress and coping theory ........................................................................................ 26 Theoretical Approaches to Trauma ........................................................................................... 27 Couple adaptation to traumatic stress. ................................................................................... 27 Relational turbulence. ............................................................................................................ 28 Vulnerability stress adaptation model. .................................................................................. 29 Posttraumatic Growth ................................................................................................................ 30 Domains of change ................................................................................................................ 31 Organismic valuing tendency theory ..................................................................................... 33 Posttraumatic growth and loss ............................................................................................... 34 LIVED EXPERIENCES AND CHILD LOSS iv Gendered Grieving .................................................................................................................... 35 Expressiveness ....................................................................................................................... 36 Instrumentality ....................................................................................................................... 36 Research studies. ................................................................................................................... 37 Criticisms of gendered grieving. ........................................................................................... 39 Male and female roles. ........................................................................................................... 42 Genetics. ................................................................................................................................ 44 Socialization and context. ...................................................................................................... 46 Discordant grieving. .................................................................................................................. 54 Relationships and Intimacy ....................................................................................................... 56 Conclusion ................................................................................................................................. 59 CHAPTER 3: METHODOLOGY ................................................................................................ 60 Phenomenology ......................................................................................................................... 60 Modifications ............................................................................................................................ 63 Rationale and Fit of Method...................................................................................................... 65 Procedures ................................................................................................................................. 66 Trustworthiness and Rigour ................................................................................................... 66 Participants ............................................................................................................................ 67 Data Collection .......................................................................................................................... 73 Data Analysis Strategy .............................................................................................................. 75 Summary of Actions.................................................................................................................. 79 Ethics ......................................................................................................................................... 80 CHAPTER 4: FINDINGS ............................................................................................................ 82 Key Findings ............................................................................................................................. 82 The relationship was affected ................................................................................................ 84 Communication significantly impacted the relationship ....................................................... 93 Grieving differences were evident between couples ........................................................... 110 Behaviour............................................................................................................................. 121 Individual grief affected the relationship ............................................................................. 131 Utilizing additional emotional outlets ................................................................................. 137 LIVED EXPERIENCES AND CHILD LOSS v Sexual relationship with partner changed ............................................................................ 140 CHAPTER 5: DISCUSSION ...................................................................................................... 144 Summary of the Research Problem ......................................................................................... 144 Summary of Findings .............................................................................................................. 145 Key Findings ........................................................................................................................... 147 Relational change ................................................................................................................ 147 Communication and intimacy. ............................................................................................. 151 Supports outside the relationship ......................................................................................... 154 Sexuality .............................................................................................................................. 156 Asynchronous grieving ........................................................................................................ 157 Active and passive grieving ................................................................................................. 158 Additional relationship factors ............................................................................................ 159 Continuing bonds ................................................................................................................. 160 Gendered grieving differences ............................................................................................. 161 Grief as consuming .............................................................................................................. 164 Theoretical Implications .......................................................................................................... 166 Counselling Implications......................................................................................................... 172 Study Limitations .................................................................................................................... 178 Conclusion ............................................................................................................................... 182 REFERENCES ........................................................................................................................... 186 Appendix A: Recruitment Poster ................................................................................................ 203 Appendix B: Verbal Recruitment – Script with Community Centre Employees ....................... 204 Appendix C: Telephone Script.................................................................................................... 205 Appendix D: Screening for Suicide Ideation or Suicide Risk .................................................... 207 Appendix E: Counselling Contact Information .......................................................................... 208 Appendix F: Participant Consent Form ...................................................................................... 209 Appendix G: Demographic Questions ........................................................................................ 211 Appendix H: Research Questions ............................................................................................... 212 Appendix I: Script for Member Checks ...................................................................................... 214 Appendix J: Bracketing............................................................................................................... 215 Appendix K: Confidentiality for Transcribing Assistant ............................................................ 216 LIVED EXPERIENCES AND CHILD LOSS vi Appendix L: Confidentiality for Coding Assistant ..................................................................... 217 LIVED EXPERIENCES AND CHILD LOSS vii LIST OF TABLES Table 1. Participant Characteristics……………………………………………………………...69 Table 2. Children Characteristics………...………………………………………………….......70 Table 3. Relationship Characteristics at Time of Loss…………………………………………..72 Table 4. Relationship Characteristics at Time of Interview……………………………………..72 LIVED EXPERIENCES AND CHILD LOSS viii ACKNOWLEDGEMENTS I’d like to thank the many people who have supported me through this endeavour and through my academic journey over the years. First, thank you to my parents, Catherine and Al Buhr. Thank you for checking in with me and for your confidence that I could overcome every obstacle, even when I doubted! Also thank you to my Nana and Papa for also always believing in me. Thank you to my friends who were always there whenever I needed encouragement along the way, particularly my best friend, Kashia and her crew. To my MA graduate-school friends Beth and Rydra. Thank you for keeping me sane! Even though you didn’t do a thesis, you were with me as I pursued mine, and I hope you know how much I appreciated that! Thank you to Jehan, for your work with the theme validation. Thank you to my supervisors, Dr. Derrick Klaassen and Dr. Briana Goff. Derrick, especially thank you for introducing me to this topic, for the time you spent providing feedback, for your encouragement, and for your belief that it would all come together in the end – it did! I would also like to thank my past mentors who have provided me with encouragement and influence along the way. To Dr. Charles Beck, who developed the internship program to help inspire undergraduate students in psychology, you provided me with the experience that encouraged me to enter graduate school. To Deb Delorme and Fernando Larrea, for teaching and believing in a young student. Also to my English teacher in high school, Miss Duggin. Thank you for your instruction on psychology, it inspired me to learn more, and I became fascinated by it. I never knew a high school class could have such impact, but yours really did. Finally, a deep and heartfelt thank you to the participants. This study would not have happened without you. I’m truly grateful for your time and contribution to the project and have been truly touched and inspired. LIVED EXPERIENCES AND CHILD LOSS ix DEDICATION To the participants. I hope your stories teach others the way they have taught me, Thank you for sharing. LIVED EXPERIENCES AND CHILD LOSS 10 CHAPTER 1: INTRODUCTION “I’m in the middle of a hurricane, in a tiny life raft. My raft’s leaking badly; some days I’m sure I’ll go down…. I can see Tom, my husband out there. He’s hanging on to a raft of his own, but he’s too far away to reach.” (Rosof, 1994, p.4) Every year, thousands of children pass away due to a variety of causes. Unintentional accidents account for the leading cause of death among children and youth between the ages of 1-24 (Statistics Canada, 2009). For children under the age of 4, the number one cause of death was cancer, the second, unintentional accidents, and the third, chromosomal abnormalities (Statistics Canada, 2009). As children age, accidents and cancer remain prevalent; however, suicide becomes more of a cause for concern. In youth between the ages of 15-24 the leading causes of death were unintentional accidents, followed by suicide, and then cancer (Statistics Canada, 2009). Unfortunately, there has also been a turn of events within the previous decades that has put children at risk as well. The school shooting at Columbine in Littleton, Colorado, which occurred in 1999 (Encyclopedia Britannica, 2012) resulted in the loss of life for twelve youth, and spurred copy-cat shootings at other schools in Taber, Alberta, Erfurt, Germany, and Red Lake, Minnesota (Timeline, 2012). More recently there was a shooting at Sandy Hook Elementary School, killing 20 children and 7 adults, which not only shocked the local community, but millions of individuals around the world (The Associated Press, 2012). Cumulatively, the top three causes of children’s fatalities, as well as the traumatic instances of