Despite lupus : how to live well with a chronic illness PDF
Preview Despite lupus : how to live well with a chronic illness
Praise for the book, Despite Lupus Lupus is a life-altering disease. What Sara [Gorman] learned is that she could let lupus alter her life or she could take charge and alter her own life to achieve better control of her lupus. During the struggle that she shares with her readers, she acquired the wisdom to accept that she would live the rest of her life with lupus. She also developed the courage to rebuild her life with lupus by taking charge of what she could control, and she shares that story. Those elements of wisdom, acceptance and taking control underlie many if not most of the stories that I hear of successfully living with lupus, and that is why I hope many will read Sara’s story and learn from its message of hope. –Penny Fletcher, President and CEO Lupus Foundation of America Greater Washington Chapter Sara [Gorman] has written a gem of a book for lupus patients struggling with a new, frightening and unpredictable illness. Her advice is also applicable to all of us: lead a healthier, happier life. Discover the inner self and what is really important to you. Change is the cornerstone of life. Sometimes when we are feeling awful, we fear that “I will feel like this forever”. That feeling is understandable but completely false. Things always change. Knowing that we will not feel the same the next day or the next week is comforting. Our ability to change and put our happiness and the happiness of our loved ones as the core of our existence makes us happier and healthier people with our chronic disease, whatever that disease may be. Sara’s book helps us learn these and other truths to help us live with lupus and lead happier lives. –Neil I. Stahl, MD Rheumatologist An invaluable resource for those dealing, not just with lupus, but any chronic illness. Truly moving. –Sam Rogers Alliance for Lupus Research Suffering through a chronic illness can be one of life’s great challenges. Not only do you have to deal with the physical ailment, but you also have to work through the emotional struggle that goes along with it. Then there’s the “what if’s”: “What if we never find a cure?” “What if I never get better?” “What if I’m sick the rest of my life?” And there’s also the pressure it can put on relationships. Sara Gorman experienced all of these — and was able to come through victoriously. Her story is inspiring, challenging, and, most importantly, full of hope for anyone diagnosed with Lupus or any chronic illness. –Steve Kroening Freelance writer for Success magazine Publisher of wisdomsedge.com Praise for the blog, DespiteLupus.com “...as a fellow lupie, I have to tell you how remarkable it is to finally have found someone who can communicate the frustrations and challenges of this diagnosis.” - Anonymous “I have RA, but a lot of the things you write about are universal to chronic diseases, so I get a lot out of your posts.” – S. “I’ve never known anyone with lupus so I have felt very alone and frustrated. I am enjoying your honesty. It’s nice to read about someone who is dealing with it instead of it dealing with them.” – K. “…reading your blog has definitely kept me doing the right things…Thanks for your positive outlook, it helps me keep my chin up… “ - M.P. “…You are right on so many points in this post. Funny, how much of what you went through and still are that I relate to, even though yours is a chronic illness and mine was acute.” – Deborah Ludwig, author of Rebirth: A Leukemia Survivor’s Journal of Healing during Chemotherapy, Bone Marrow Transplant, and Recovery “…You express what I feel so well…It’s so nice to know [this] isn’t something I’m experiencing alone.” - A. “I will have to keep an eye out for your book. I enjoy reading your blog as I can really relate to [many] of the feelings you have about things…Kudos to you girlfriend! “ - M. N. V. “…I am finding it to be a good practice to look at your blog…for a sanity check and just to remind myself to slow down and be more careful about what I get involved with…It’s great (even for a non-lupite)!” – J.H. “I just love reading your stuff - and am amazed at your strength and humor. Thank you for being out there for all of us.” - M.P. “… I can’t wait to read the book! You provide wonderful insights and great resources for people.“ – G.V. “Your blog is fantastic! You are an excellent writer -- I found myself really drawn in, and wanting to read more. Even though I don’t have Lupus, I felt I could really relate to much of what you write about.” – R.C. “Wow, I just read your whole blog and I feel like we are leading almost identical lives.” - M. “I’ve been following your journey for several months and I find you to be inspirational.” – D.C. “…What a wonderful woman, fighter and awesome writer…”– S. “Thanks for sharing the recommendations! It’s always good to find new ways of helping to deal with the pain.” – C. “I read your blog and I find that you are such a strong person…thanks for sharing.” – A.Z. “Your poem is awesome and says EXACTLY how I feel. You nailed it girl! Good job!” - M.P. “Great blog, your profile inspired me. I have lupus & I too have been fighting life.” – M.M. “Sometimes your blog serves as a reminder that I’m doing too much! …I definitely need to be better at recognizing the fatigue before I get really sick!” – L.B. “Your insights show a [lot] of personal growth and reflection - someone who lives with the disease and seeks to understand its role in our life and relationships.” – C.J. “Excellent blog...you are a hero!” – A.C. ”I enjoyed reading your blog - thanks for sharing! Your story is inspiring.” – S.T. “It’s informative, well written, and colorful…your stories are powerful.” – M.S. “Your blog is great. The entries have a great balance of information and the casualness of talking to a friend.“ – S.F. “…Just wanted you to know how interesting it is to read your stories and how amazing your attitude and personality [are] in spite of all that you’ve been through and continue to go through.” – C.T. “You are such an exceptional writer, and your stories are so moving…” - E.H. “I really respect your blog…It’s good to hear from someone out there that has lupus [and] is pregnant and having a positive experience… I think it is really helpful to know that there are other people out there just like me…you never get to hear about the good cases of lupus and pregnancy…you always only hear about the bad ones…” - A.W. “I very much appreciate the blog - your writing, sharing, and providing it as a resource. There aren’t enough good sites out there. Believe me, I’ve looked!” – M.T. “…your blog is so great. I really enjoyed your writing. Everything is so well written; and very inspirational as well.” – L. “First of all, I want to thank you for the positive and comprehensive review you wrote in the first blog! It was one of the best I’ve ever seen! And then the second one, in which you expressed some valid concerns, was also very well done, factual and comprehensive. I truly appreciate that…” – R.C. “Thanks for this post. It’s good to hear reminders like this from time to time.” – S.
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